Stretched
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I stopped this med as of Friday, Jan 11, 2013, after a month's 'endurance' trial, to say the least.
(Started 12/7/12, at 900 mg twice a day. At 10 days had to drop to half that dose...
This weekend was unpleasant but today it feels like the cure was worse than the illness, and stopping
the 'cure' is worse!
I've read a lot of literature on Valcyte, which is formidable and includes all possible mfr's CYA possibilities.
My doc is out of town this week so I'm equivocating whether to restart Val or tough it out. (It feels like a narcotic
Pill or alcohol withdrawal syndrome - ache all over and can't think clearly, etc.)
I would appreciate any experiences from anyone else who tried it and then gave up the ghost.
Thanks, and great forum from a long time PWME/CFS
Fwiw, over the years of dealing with ME the only thing that stood out in tests was a then active CMV in 1991,
but no drugs - so I've treated symptoms and avoided the unproven, but took a SWAG at revisiting the old
CMV in hopes of winning the lottery=-(
I stopped this med as of Friday, Jan 11, 2013, after a month's 'endurance' trial, to say the least.
(Started 12/7/12, at 900 mg twice a day. At 10 days had to drop to half that dose...
This weekend was unpleasant but today it feels like the cure was worse than the illness, and stopping
the 'cure' is worse!
I've read a lot of literature on Valcyte, which is formidable and includes all possible mfr's CYA possibilities.
My doc is out of town this week so I'm equivocating whether to restart Val or tough it out. (It feels like a narcotic
Pill or alcohol withdrawal syndrome - ache all over and can't think clearly, etc.)
I would appreciate any experiences from anyone else who tried it and then gave up the ghost.
Thanks, and great forum from a long time PWME/CFS
Fwiw, over the years of dealing with ME the only thing that stood out in tests was a then active CMV in 1991,
but no drugs - so I've treated symptoms and avoided the unproven, but took a SWAG at revisiting the old
CMV in hopes of winning the lottery=-(