I posted that soon after posting here asking for help, in an effort to get people involved. I was hoping people would help build it with some encouragement.
Can I try to explain how wikis work by giving you a use case? There are a LOT of fears here about people making huge massive judgements about ME based on seeing unproven treatments that are listed q far down in the home page clearly under the heading "alternative interventions". It is unlikely a member of the public will a) look at that page or b) if they did, come away with a conclusion of "these people are all crazy"
Wiki users often don't visit a home page. They are directed to a page which is a standalone page on a topic, read what they are looking for and click through links from that page to more detail. (Think about how often you go to a Wikipedia page from Google. Now tell me what the home page for Wikipedia looks like. See?)
On millionsmissing.org we have brief descriptions of ME under headings like "symptoms" but then for more detail, someone can click through directly to the "symptom" part of the primer page. The number of users that you can engage to that level of clicking on a secondary link on a secondary page is not super high.
So, one user flow or path for a journalist might be:
.. And then back and forth at that level. Maybe never going to the home page. So, when I said "used heavily as an information resource" I meant that some people may explore deeply at this level and it would be super f*ing awesome if pages linked from the primer pages especially, were built out more. Lots of these pages are already really really GREAT. Look at them.
But, the great thing about wikis, is that the user understood paradigm of wikis is -- they are works in progress. So if a user reaches a page which is incomplete, they already understand that it doesn't mean there is no information on that topic, they understand it is not completed yet. The wiki language signals that. But, the user already knows because they've encountered this before in other wikis like Wikipedia.
I hope this helps assuage some fears. I hope you all visit these pages to understand how useful they are as quite comprehensive overview pages for lots of great stuff to do with our disease -- links to studies etc. that doesn't exist all in one place elsewhere.