R
Robin
Guest
I just found out that my uncle is losing his battle with Mantle Cell Lymphoma. He will likely be no longer with us soon.
Mantle Cell Lymphoma (MCL) is a rare form of Non Hodgkins Lymphoma which primarily affects men over the age of 60. The prognosis is poor. Most people die within 6 years of diagnosis. The treatments are pretty severe to buy those few years. My uncle went through a chemo/stem cell procedure two years ago; basically they removed some of his bone marrow stem cells, then used massive chemo to totally wipe his immune system. During this time he had to go into isolation because he was incredibly suseceptible to infection. Then he was given the stem cells back. He lost his antibodies and lifetime immunity; he needed to be revaccinated and everything. (This is the type of procedure that is being studied in MS, not the infusions that Cheney is having CFS pateitns get.) He couldn't go to the hospice to see my grandmother when she was dying because she had some hospital acquired infections and the germs were too risky for him.
I think, but I'm not sure, that this is the type of procedure that killed Dr. Bateman's sister who had NHL (and CFS.)
Supposely, Mikovits started studying XMRV in CFS because of Peterson's NHL patients, specifically the Mantle Cell because of the shocking incidence of it. Having witnessed the horror of MCL, I'm wondering why the WPI isn't looking into this?
Lymphoma and Leukemias have been on the rise in the US for years while most other cancers have been decreasing. There have been no studies specifically looking into the incidence of lymphoma in CFS patients beyond a small observation study done by Peterson many years ago. This is a promising (and scary) avenue of research and yet it's being overlooked!
It's possible that it's coincidental that my uncle has MCL but of course I'm wondering now if there's a connection between that and my CFS.
Mantle Cell Lymphoma (MCL) is a rare form of Non Hodgkins Lymphoma which primarily affects men over the age of 60. The prognosis is poor. Most people die within 6 years of diagnosis. The treatments are pretty severe to buy those few years. My uncle went through a chemo/stem cell procedure two years ago; basically they removed some of his bone marrow stem cells, then used massive chemo to totally wipe his immune system. During this time he had to go into isolation because he was incredibly suseceptible to infection. Then he was given the stem cells back. He lost his antibodies and lifetime immunity; he needed to be revaccinated and everything. (This is the type of procedure that is being studied in MS, not the infusions that Cheney is having CFS pateitns get.) He couldn't go to the hospice to see my grandmother when she was dying because she had some hospital acquired infections and the germs were too risky for him.
I think, but I'm not sure, that this is the type of procedure that killed Dr. Bateman's sister who had NHL (and CFS.)
Supposely, Mikovits started studying XMRV in CFS because of Peterson's NHL patients, specifically the Mantle Cell because of the shocking incidence of it. Having witnessed the horror of MCL, I'm wondering why the WPI isn't looking into this?
Lymphoma and Leukemias have been on the rise in the US for years while most other cancers have been decreasing. There have been no studies specifically looking into the incidence of lymphoma in CFS patients beyond a small observation study done by Peterson many years ago. This is a promising (and scary) avenue of research and yet it's being overlooked!
It's possible that it's coincidental that my uncle has MCL but of course I'm wondering now if there's a connection between that and my CFS.