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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Who should I see

D

Darran321

Messages
39
Hi Everyone
I will keep this short, following a bad virus 3 years ago I was told by a specialist I may have CFS.
My symptoms are for the last 3 years
Head pressure pain and pain in my neck glands not swollen just pain.
If I try to exercise 48hrs later the head pain and neck gland pain can be quite severe.
I have never suffered with anything else at all.
I have an appointment with a neurologist this week I don’t know wheather to cancel it.
Looking for advice to whom I should see
 
A

alkt

Senior Member
Messages
339
Location
uk
iff I remember correctly a member named learner set up a post with a roadmap regarding medical testing . sorry it wasn't learner but a member called hip .if you go to the home page and put roadmap for testing and treatment should take you right there
 
Last edited:
J

JBoneske

Messages
80
In order for you to be sure you need to have everything ruled out.
Wouldn’t you want to find something you could fix?
You said noting about fatigue either.
 
D

Darran321

Messages
39
JBoneske said:
In order for you to be sure you need to have everything ruled out.
Wouldn’t you want to find something you could fix?
You said noting about fatigue either.
Click to expand...
Fatigue l get only if I try to exercise which can last for 3 or 4 days. I just find it strange I only have the above symptoms from the neck up
And have been told it’s CFS
 
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