That's not the one I was thinking of, but is an interesting study. A newer version is here; Griffith has another take here. UK based one is here (not sure I read the full text of that). These are good citations for prevalence, as they are nuanced regarding different definitions and ways of selecting patients, etc.I read through this Leonard Jason article. Is this the one you meant, @WillowJ ? Do you mean the FDA study linked to in your research goal text?
Yes, the FDA Voices of the Patient report is excellent.
One Jason paper I was thinking of regarding lack of attention in medical school is here.
Yes, that's a fantastic one, too. I knew there was more than one, but could think of only one, so glad you found another.
The UK papers on patient needs are like this:
http://www.ncbi.nlm.nih.gov/pubmed/20003363
http://www.ncbi.nlm.nih.gov/pubmed/22044797
Not sure I read the full text of the second.
Most of the info should be the same from country to country (what problems the illness poses). While benefits are different from place to place and it may be a little less hard in some parts of the US to get benefits with a "CFS" diagnosis once you have a strong claim, getting a strong claim still requires a helpful doctor, which is difficult anywhere. Particularly as it is not hardly taught in medical school (or conferences unless you specifically to to an ME one), you can't expect to find a doc who knows how to assess such a patient or find a test that will show a physiological defect (and as it's not a mental illness, this is required).