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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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When you have no logical explanation for something is easier to say that thing does not exist. This is the good assumption. The bad assumption is that when because of your uncontrolled experiments millions of people suffer and die you are still interested to hide the dirt under the carpet.why?
It's really weird.
Since when governments are interested in human well being? Never. Maybe more interested in human control/ population control.
@SilverbladeTE, I disagree.
Unlike yourself I don't believe any good was done in politics after World War 1 and 2. Those wars were planned on purpose so the imperialist agenda could settle further in. That's what happened after those wars and happens every war.
Governments are large machines to manipulate and control masses.There are number of very good human beings part of this machine, they are used and they believe in the government the way you do. They, and people who knows them, sees them tend to believe the governments are interested in human well being.
I don't intend to get political further, I felt I had to answer somehow.
Drugs like Rituximab are about out of patent world-wide. Pharma does not have the financial incentive to really deliver it. Yet with one drug demonstrated to be effective (if that happens, ask me this time next year) they will see a market open, and start looking at other things.
No drug is demonstrated to be effective. This is why I suggested ask me next year. The Rituximab results are expected to be unblinded in October, so we might learn more in the months after then, though probably only a brief statement until a paper is released in 2018.Hi Ales, which drug was demonstrated to be effective? Thx
I agree with the majority of your posts ......why?
It's really weird.
why?
It's really weird.
A pilot study by 2 Norwegian canacer doctors (Fluge and Mella) showed that 33% of patients improved significantly, 33% recovered and the rest no response, on Rituximab.Hi Ales, which drug was demonstrated to be effective? Thx
I feel I can do Also a consideration (without being Considered misogeno): It is Said That the female population is affected mostly by the ME ..... However That known to have had the courage to admit That they have infected other people are only men
If the phase 3 Rituximab trials work as expected we will have powerful ammunition for advocacy to push for treatment, more science, and better bureaucratic handling of patients. Until then we have no proven therapy aside from Ampligen which is not a cure and harder to advocate for. Dangling a cure will be powerful incentive for a lot of the players though the psychobabblers will hate it.Because anti depressants and talk therapy is cheaper than Rituximab and plasma exchanges.
Perhaps its a language thing, but are you saying that the only reason men get ME is through sexual contact with women?
I believe that ME is an infectious viral disease, no matter who is sick (man, woman, black, white ..., poor, rich) mainly transmitted in the family \ relatives \ friends with saliva
There is no good evidence this is the case for ME, aside from the initial infection. The unknown virus thought to be in China and possibly elsewhere by now might or might not be a similar disease. There are however some infections that might reactivate in ME and so be transmissible for a narrow window of time. There are definitely transmissible viral and other infections that might cause ME, but again once the infection is over there is no good evidence of transmission.I believe that ME is an infectious viral disease, no matter who is sick (man, woman, black, white ..., poor, rich) mainly transmitted in the family \ relatives \ friends with saliva