Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I truly believe that some people get well with DNR but I do not think they have ME. If you are well enough to travel across America and take part in Annie Hoopers seminars then you do not have ME.
I found the same with the Lightning Process. Everyone there was functional.
I wouldn't bother looking Marky if I was you. Wait for Rituximab. Why aren't you doing it now? Money?
I truly believe that some people get well with DNR but I do not think they have ME. If you are well enough to travel across America and take part in Annie Hoopers seminars then you do not have ME.
I found the same with the Lightning Process. Everyone there was functional.
I wouldn't bother looking Marky if I was you. Wait for Rituximab. Why aren't you doing it now? Money?
Shame we can't all work hard and put in overtime to save up quicker!!!
where are you planning on having it Marky?
The reason I mentioned DNRS is because @Marky90 wrote "I've been reading some horrible stories of patients who are totally bedbound and also seem to have 50 + symptoms to deal with.. E.G horrible pain, all kinds of sensitivities, allergies you name it." DNRS seems to really help people with sensitivites, allergies, also some people were really weak too. Some were bedridden, unable to be upright at all, due to POTS. They first do the home program before going to the seminar. I think some of them would fit the definition of ME though I may be wrong. Even if not, they are still severely ill.
I totally agree @digital dog that its not for everyone, even I feel too weak to try it and learn it at home. But there are pretty amazing stories. So far I have not seen any research showing lasting success of people who took Rituximab but if others try it, I hope it helps them. I think a lot of people are put off by DNRS bc they think they are saying the illness is in their head. That is not true at all. DNRS is saying the illness is physical, but we will use the power of the mind to change the physical.
@Marky90 do you know if you will be a good candidate for rtx?
I've paid out thousands for Guptas, LP and Annie Hoopers but they didn't work for me. I think my brain is just too broken
I've never understood how something requiring as much cognitive effort as LP and the rest could be at all useful for anyone with ME type cognitive problems. I still struggle now just concentrating on the one thing. If I were simultaneously trying to convince myself that I didn't have any symptoms at the same time I wouldn't be able to do anything at all.Maybe the treatments are broken, not the patients.