Quote from another thread:
CDC - definitely under threat. The CDC receives money from many avenues. Currently, the only ME/CFS specific funding in the federal appropriations process goes to the CDC. As long as that line item stays funded (and we worked very hard to make sure it does!), the CDC will continue to receive about $5.4m per year for ME/CFS related work. That being said - the CDC overall is facing very steep cuts by the elimination of the Prevention and Public Health Fund (PPHF) and we've heard rumors that a number of programs are facing elimination and restructuring. We cannot say for sure whether or not ME/CFS will be one of those programs. We have strong advocates for our work within the CDC and they have assured us the multi-site study is not threatened this year. At this time, not a single budget bill for FY 18 has been released - so we cannot confirm that.
It seems
@Emily Taylor was right and the CDC ME/CFS budget is now under immediate threat - again.
From SMCI (Solve ME/CFS Initiative):
Take action! Restore ME/CFS Funding now!
Last week, the House Appropriations Subcommittee on Labor-HHS finally released their vision of federal spending for Fiscal Year 2018 in
H.R. 3358. We are disheartened to share that the accompanying committee report, again, zeroed out the $5.4 million line item for Chronic Fatigue Syndrome at the CDC’s Center for Emerging and Zoonotic Infectious Diseases. Now, we turn to the Senate to restore the funding for these critical research, education, and awareness programs.
To push back against this reduction, we’ve made it very easy. Send a message to your members of congress.
SMCI asks all US ME patients to take action:
https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00009&cid=