I am in this study pretty sure. Here is the thing, a few years ago I was so sick that it was not even funny. I would describe it as suffering. Today I feel better. I do not have more energy, I can do about as much as I used to ( or less since I pace more). So I have come to conclusion that this scales can measure like how much you can do but not like live quality.
I don't know is hard to explain. As I was filling out the question was like, well it feels as if all is the same but it really is not. Or maybe I was sooooo bad that I was really a 2 and not a 6 like I thgouht. I don't know the issue per say. But is as if Cfs has 2 dimension: what energy you have to spend, which is independent of how many symptoms and how bad you feel.
I don't know is hard to explain. As I was filling out the question was like, well it feels as if all is the same but it really is not. Or maybe I was sooooo bad that I was really a 2 and not a 6 like I thgouht. I don't know the issue per say. But is as if Cfs has 2 dimension: what energy you have to spend, which is independent of how many symptoms and how bad you feel.