Cinders66
Senior Member
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I would say that is very,very unlikely. What happens in the near future regarding what treatments are available on the NHS will probably be decided by the Gov advisory panel NICE. I dont think these MPs would support pacing CBT and that sort of thing.the question is, what treatment, pacing?
I would say that is very,very unlikely. What happens in the near future regarding what treatments are available on the NHS will probably be decided by the Gov advisory panel NICE. I dont think these MPs would support pacing CBT and that sort of thing.
I doubt this lot of MPs will defer to NICE.Nice is essentially taking care of that “management” aspect so i don’t know really this APPG meeting tweets mean, as MPs usually defer to NICE
So you think nice will be unsatisfactory and the MPs will challenge? Dr Charles Shepherd of mea and silly weiraee on the NICE guidelines boardI doubt this lot of MPs will defer to NICE.
Looking at its past behaviour I would not put much faith in NICE doing anything much for ME/CFS. I hope I'm wrong. So yes, NIce maybe a dead loss and these MPs will kick up a fuss about it. However the fact that they would do this might deter NICE from coming up with anything to crazy.So you think nice will be unsatisfactory and the MPs will challenge?