Tom Kindlon
Senior Member
- Messages
- 1,734
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Outstanding! They've produced a report with some strong recommendations for NICE.
http://www.meassociation.org.uk/2015/05/23959/
Well done, MEA - can't happen fast enough.
Thank you, @charles shepherd!
That's excellent news!The key results and conclusions from this massive 'patient evidence' MEA report containing both quantitative and qualitative evidence on the acceptability, efficacy and safety of CBT, GET and Pacing has now been turned into an academic paper
The paper is currently going through the per review process with a leading medical journal.
As with the PACE trial data re-analyis, this sort of 'patient evidence' research has to appear in a reputable medical journal if it is going to be taken seriously by doctors and the medical establishment
Link to the Executive Summary of the MEA report and a free download of the full report: http://www.meassociation.org.uk/2015/05/23959/
This willful blindness would not be acceptable elsewhere.
I did not work with in the medical field, or with vulnerable people. There were times in my working career when I had to stand up and make a fuss because I believed the decisions being taken were likely to harm either my client's or my employer's reputation and to have serious financial consequences.e Sometimes this meant swimming against the tide of popular opinion, but as the one in the "hot seat" I felt I had a moral duty all round.
Those who work in the "caring professions" need to take responsibility for their own actions. This idea of something being acceptable just because someone else says so facilitates neglect and abuse. The recent scandal at Stafford Hospital in the UK is a prime example of no one speaking out.
Each nurse, physio, psychologist and doctor is morally responsible for their actions with each patient. It's way past time for them to accept that and be held accountable.
Edited to correct spelling of hospital trust name.
This willful blindness would not be acceptable elsewhere.
I did not work with in the medical field, or with vulnerable people. There were times in my working career when I had to stand up and make a fuss because I believed the decisions being taken were likely to harm either my client's or my employer's reputation and to have serious financial consequences.e Sometimes this meant swimming against the tide of popular opinion, but as the one in the "hot seat" I felt I had a moral duty all round.
Those who work in the "caring professions" need to take responsibility for their own actions. This idea of something being acceptable just because someone else says so facilitates neglect and abuse. The recent scandal at Stafford Hospital in the UK is a prime example of no one speaking out.
Each nurse, physio, psychologist and doctor is morally responsible for their actions with each patient. It's way past time for them to accept that and be held accountable.
Edited to correct spelling of hospital trust name.