Mary
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@Sushi - one more question - does it help with PEM? That's my worst symptom - thanks so much for your info!
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Sushi
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I am much less apt to get PEM if my overall condition is better. So, while I can't say that it helps with a specific symptom (and that would vary from person to person anyway), I have less PEM if I take Nexavir regularly. For most, it seems to take a while for the benefits of Nexavir to kick in.
Mary
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Thanks @Sushi!
This might not be a great list, looking at it years down the road. But that blog in general is a very good one, written by one of the smartest patients I've seen blog over the years. There are some recent entries; But although it's somewhat off-topic, I suggest taking a look at the email exchange he had with Wessely from, I think, August 2010. It's in 3 parts. Good stuff.
Marky90
Science breeds knowledge, opinion breeds ignorance
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digital dog
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would nexavir be out of the question if you cannot tolerate a lot of amino acids?
I have tried a number of amino acids orally and some have made me feel dreadful.
It is said to make sleep better so I am looking into it.
I have tried a number of amino acids orally and some have made me feel dreadful.
It is said to make sleep better so I am looking into it.