I am quite sure that I have POTS issues. My doctor has already noted that my heart rate jumps up like mad when I stand up, and my own heart monitor confirms that very conclusively. It is consistent, and not at all subtle, and not in question. It takes all of two seconds or less to watch it happen.
I'm quite severe, and am leery of putting myself through any kind of strenuous testing unless there is real solid information and benefit to be gained. Obviously extra info is always useful, but preserving what little functionality I have left is also important. Being upright for even a very short time is enough to crash me in my daily life.
So... I've been leaning towards a trial of a few POTS medications without going through a full tilt table test. Did anyone get any real benefit from doing the full test aside from confirming that there was a problem? Was there a significant change in the way your doctors approached treatment due to having more information on what bp was doing, etc.? I often read of people here recommending tilt table testing to anyone who has orthostatic intolerance issues, but did people really find it that useful (aside from demonstrating disability in an objective way for insurance companies, disability benefits, etc.)? Would you have regretted not having it done? I would appreciate your insight.
I'm quite severe, and am leery of putting myself through any kind of strenuous testing unless there is real solid information and benefit to be gained. Obviously extra info is always useful, but preserving what little functionality I have left is also important. Being upright for even a very short time is enough to crash me in my daily life.
So... I've been leaning towards a trial of a few POTS medications without going through a full tilt table test. Did anyone get any real benefit from doing the full test aside from confirming that there was a problem? Was there a significant change in the way your doctors approached treatment due to having more information on what bp was doing, etc.? I often read of people here recommending tilt table testing to anyone who has orthostatic intolerance issues, but did people really find it that useful (aside from demonstrating disability in an objective way for insurance companies, disability benefits, etc.)? Would you have regretted not having it done? I would appreciate your insight.