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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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thimoquinone is in black seed oil....i find when i rub black ssed into my skin i get instant relief. In fact when i took it at the beginning i thought i was on the way to recovery. As i understand it, its a powerful anti inflammatory
thimoquinone is in black seed oil....i find when i rub black ssed into my skin i get instant relief. In fact when i took it at the beginning i thought i was on the way to recovery. As i understand it, its a powerful anti inflammatory
Did it stop working after a while?
Sorry i can't remember. I actually wrote to OMF about black seed oil because of the effect it had on me. No sympathetic activation or pots when i took it. I knew thymoquinone was a potent anti inflammatory. I had no idea they could isolate and use it as a drugWas this mentioned by Alain Moreau? I think I missed this bit.
It's never stopped working but the dose in black seed oil will not be the same as a straight dose of thimoquinone. I just got used to it a bit but i still get relief. When i 1st took it, POTs and virtually all symptoms vanished for hours at a time. Of course i ruined t hat by then thinking i was cured and doing to much. Google thimoquinone tho..Its very potent
Did you take it orally or topically?
@Oliver3 wow, I might buy some and give it a shot, and try not to over do anything. What kind of dose are you taking? That article is pretty detailed wow, seems to have some seriously interesting properties.
Cheers mate!
Summary of metabolic trap - looks promising since only 1 of 70 patients tested have zero IDO2 damaging mutations. The general population is at a rate of 10% having no damaging IDO2 mutations.
However we still need more time to confirm it. Hopefully they can get a definitive answer by next years Symposium. By that time they should be able to test hundreds of patients DNA, and hopefully get some actual mass spec work done.
Not having been able to follow the talks, however, reading the summaries here, I am concluding that work is progressing. However, it looks like there is still so much to do, and a very long way off for any treatment--decades. No one has cracked the illness yet. I just don't understand why. We can fly to Mars, to the Moon, build extraordinary computers, and yet we cannot figure out what is going on with this illness. It is just not comprehensible to me. It is also very alarming. Of course, this group is committed, and hard working and passionate--this is not at issue. But we are talking about a grave and seriously disabling illness. What is it that is amiss? I am heartbroken. I know several severely ill young people, rotting in bed, and declining daily. Lord have mercy.
Copaxone has been recommended for MS; the MS folks avoid it like the plague because of the side effects; and there are even some MS doctors who discourage patients because of the side effects; Dr Wahls says to keep away from it; I don't know anything about SS-31, however. Thank you for your work with MEAction; thank youDr Vicky Whittemore (NIH) at Invest in ME Conference (2019):
"advocacy groups --- that's what makes the difference -
- when they [elected representatives] hear that, from people with the disease -
- advocates -- telling them [elected representatives] what's needed is really what makes the difference"
I do some lobbying with ME Action.
There's a bunch of stuff which could be progressed now - diagnostic test e.g. nano-needle; evaluating drugs e.g. copaxone and SS-31.
Copaxone has been recommended for MS; the MS folks avoid it like the plague because of the side effects; and there are even some MS doctors who discourage patients because of the side effects; Dr Wahls says to keep away from it
Copaxone has been recommended for MS; the MS folks avoid it like the plague because of the side effects; and there are even some MS doctors who discourage patients because of the side effects; Dr Wahls says to keep away from it; I don't know anything about SS-31, however. Thank you for your work with MEAction; thank you