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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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http://www.bristol.ac.uk/news/2016/january/chronic-fatigue-syndrome.html
Important Quote:
"The researchers point out that the diagnosis of CFS was not made by a doctor, but is based on responses to questionnaires sent to both the teenagers and their parents."
Yet at the start of their press release they say:
"In what is believed to be the biggest study of chronic fatigue syndrome (CFS) – also known as myalgic encephalomyelitis (ME) – in children to date........"
Agreed. With ME its even more useless than CFS though, as chronic fatigue is not a required criteria in some definitions, just optional, and many ME patients do not have chronic fatigue at all. So if anyone claims ME = CFS they are claiming that you can have CFS without CF.Fatigue studies are meaningless for ME/CFS.
I can see the limitations of this study, certainly, but my main interest here is whether there may be an increase in prevalence of ME/CFS in the Bristol area of the UK.
If she moved to the south pole there would be an outbreak of "fatigue" among the penguin population.
If she moved to the south pole there would be an outbreak of "fatigue" among the penguin population.
Is the treatment Cold Bird Therapy? Because I thought they already had enough of that.Followed six months later by an outbreak of PRS (Penguin Refusal Syndrome).
Part of the problem is also due to the fact that "fatigue" doesn't mean much in itself. It's a general and vague word, and can reflect very different realities