• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

"The results they really didn’t want you to see: key ME/CFS trial data released" (The Canary, Oct 2)

Esther12

Senior Member
Messages
13,774
All charities were kindly sent this.

Invest in ME retweeted this. AFME did not and therefore their members are in the dark over all the PACE trial. They have passed on all junk news and trivial stuff but they always avoid the important news.

Did there MEA tweet this to their followers?

I couldn't see it in their stream. @charles shepherd - major story on PACE trial is surely worth informing people about?