Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Cort has been Tweeting some comments for anyone interested. He can be followed at: https://twitter.com/#!/CortJohnson
Thanks Cort and to you all - we are closely following what you able to send us. Byron Hyde has been speaking for years of "missed diagnoses" - one wonders what he does pick up other Docs do not. Could be a good check list for starters for all.
Thanks Cort and to you all - we are closely following what you able to send us. Byron Hyde has been speaking for years of "missed diagnoses" - one wonders what he does pick up other Docs do not. Could be a good check list for starters for all.
Cort, can you talk about attemdance for today? And patient vs dr that are attending? Thx
Cort, There is a poster from Cheney and Ruggiero about Maf 314 in this conference?
Now that is good news... thanksI think there is...haven't been in there yet... I talked to Dr. Baraniuk - he has six posters on his brain proteome validation study. He said it went better than expected and more papers are coming. He also said he applied for six more grants.
Now he suggested that his results could be due to exogenous virus activation (XMRV) or due to reactivation of endogenous retroviruses... Then he noted that endogenous retrovirus activation has been shown to be triggered by inflammation or herpesvirus activation; ie even if its not XMRV he considers it to be clinically significant.
I talked to Dr. Baraniuk - he has six posters on his brain proteome validation study. He said it went better than expected and more papers are coming. He also said he applied for six more grants.
Cort, we don't know how big the room is... is there 200 people? 300?
Interesting, but in a way also disappointing, i expected a "real" positive study. Any word about blinding? Was this done blind?