Annikki
Senior Member
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- 146
I read a book about chronic disease, in general, which does include CFS/ME, called "Kingdom of the Sick," by Laurie Edwards. In the book, Edwards cites another book as a reference, called, "All in My Head: An Epic Quest to Cure an Unrelenting, Totally Unreasonable, and Only Slightly Enlightening Headache," by Paula Kamen. https://www.amazon.com/All-Head-Unrelenting-Unreasonable-Enlightening-ebook/dp/B003PJ6UI4
I'm still working on "All in My Head," but I thought I'd share one page from that book, which talks about how even "feminists" had turned their backs on CFS/ME patients, and women's pain and disease. I highly suggest Maya Dusenbery's book, "Doing Harm," too.
https://www.bitchmedia.org/article/in-sickness/tired-girls-feminism-chronic-illness
I can't stress enough, that the problems faced by those of us with CFS/ME, are nearly identical to those of people in other patient communities. I believe that collaboration between all patient groups affected by "official" medical disbelief, is necessary for things to change for CFS patients. Plus, it never hurts to have people in your pocket who are more mobile than you. It's sort of like, "well you have no arms, and I have no legs. I will do the writing and you will run errands." Collaboration among the sick is never a bad idea.
So, Kamen's book provides a short history of how many diseases affecting women, like CFS, came to be "debunked." LOL, Kamen is pretty clever with the title of her book, since it was her migraine headaches which doctors attributed to "feminine hysteria." You may recognize some names in the article, some are known for treating CFS as a joke.
I'm still working on "All in My Head," but I thought I'd share one page from that book, which talks about how even "feminists" had turned their backs on CFS/ME patients, and women's pain and disease. I highly suggest Maya Dusenbery's book, "Doing Harm," too.
https://www.bitchmedia.org/article/in-sickness/tired-girls-feminism-chronic-illness
I can't stress enough, that the problems faced by those of us with CFS/ME, are nearly identical to those of people in other patient communities. I believe that collaboration between all patient groups affected by "official" medical disbelief, is necessary for things to change for CFS patients. Plus, it never hurts to have people in your pocket who are more mobile than you. It's sort of like, "well you have no arms, and I have no legs. I will do the writing and you will run errands." Collaboration among the sick is never a bad idea.
So, Kamen's book provides a short history of how many diseases affecting women, like CFS, came to be "debunked." LOL, Kamen is pretty clever with the title of her book, since it was her migraine headaches which doctors attributed to "feminine hysteria." You may recognize some names in the article, some are known for treating CFS as a joke.
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