Dr.Patient
There is no kinship like the one we share!
- Messages
- 505
- Location
- USA
With the recent term SEID, and the discussion going on, I'd like to see what people here think ...
According to the extremely well put argument by @SOC on another thread, we have to identify the smallest set of features that uniquely defines our condition, that would capture almost all of our patients at all stages of our illness.
That term is prolonged-recovery asthenia gravis. PRAG.
PEM is the classic feature. More important, debilitating weakness is the other one that is present in all of us.
Post exertional malaise, or post exertional Neuro immune exhaustion, means " I get badly exhausted after exertion." Try this on a normal person. Will he say that he doesn't have this?
The key here is the recovery that happens after exhaustion in us is prolonged, for days, months... Will a normal person say he has this?
Asthenia is the right term to describe our lack of strength. Wonder why that never came into being initially, and how the hell did "fatigue" take it's place.
The subsets of patients that will immediately raise objection can be classed with a Neuro, viral, orthostatic etc..qualifier. Can they deny they don't have asthenia or prolonged recovery? If they say they have energy to live as before, and their exhaustion after exertion lasts only a day, perhaps, they have another illness, and not PRAG.
Please vote, thank you all in advance!
According to the extremely well put argument by @SOC on another thread, we have to identify the smallest set of features that uniquely defines our condition, that would capture almost all of our patients at all stages of our illness.
That term is prolonged-recovery asthenia gravis. PRAG.
PEM is the classic feature. More important, debilitating weakness is the other one that is present in all of us.
Post exertional malaise, or post exertional Neuro immune exhaustion, means " I get badly exhausted after exertion." Try this on a normal person. Will he say that he doesn't have this?
The key here is the recovery that happens after exhaustion in us is prolonged, for days, months... Will a normal person say he has this?
Asthenia is the right term to describe our lack of strength. Wonder why that never came into being initially, and how the hell did "fatigue" take it's place.
The subsets of patients that will immediately raise objection can be classed with a Neuro, viral, orthostatic etc..qualifier. Can they deny they don't have asthenia or prolonged recovery? If they say they have energy to live as before, and their exhaustion after exertion lasts only a day, perhaps, they have another illness, and not PRAG.
Please vote, thank you all in advance!