Hi
@Gingergrrl, I'm really interested in the Nebulized Glutathione that you've mentioned across this forum. I'm glad it's helping you. I too am trying to detox mold. I have been doing the Brewer Protocol for 1 year without improvement and recently started systemic antifungals as my doctor thinks the mold could be colonized in my lungs as well as my sinuses. I don't have any MCS (or mold sensitivities per say), just CFS with confirmed mycotoxins from RealTime Lab. I have a few questions:
@junkcrap50 Thanks and I found the nebulized glutathione to be helpful. I did it from approx end of Oct 2015 to March 2016. I did not stop b/c of any bad effects but b/c I had to travel to see a doctor and it was too difficult to bring all the supplies (the glutathione has to be refrigerated) and then we had a flood in my apt and I never got back to it. I did it with very mild mold binders that I could tolerate like oats and apple pectin. I do have MCAS but if you do not, you could probably tolerate the normal mold binders like activated charcoal, Bentonite Clay or even CSM which I could not.
1.)What is the usual dosage or dosage you use for nebulized glutathione? (I can't get a price from a pharmacy without it nor would my doctor know what dose to prescribe.) From what I can tell online, the dosage varies for MCS, Parkinson's, COPD, emphysema, etc.
2.) How often do you do it? Daily I presume.
3.) How long have you been on it?
4.) Has it helped your mold exposure? Did your MCS start with your mold exposure?
5.) Do you think it's helping raise your overall glutathione levels?
Will try my best to answer all these..
1) I believe I started at 200 (mg?) and it was too high so we reduced it to 100 mg and then built back up to 200 mg and then I ultimately built up to 400 mg. I would have to go back and review my notes to confirm though. Wellness Pharm was able to give me the exact prices for the Glutathione, the syringes, the saline, the shipping, and anything I needed.
They switched from plastic to glass vials which is why it came with syringes to draw up the product for the nebulizer (but you are NOT injecting anything into your skin). My mold doctor advised me as to which dose to try and we had several phone consults throughout the process. I had my first dose at my MCAS doctor's office at the hospital b/c there was a tiny risk of bronchospasm which I did not have with the later exception of one batch which the pharmacy let me exchange for a full refund and it never happened again.
ETA: My mold doctor wrote the prescription and this is not an OTC product like the glutathione pills or liquid form.
2) I did it once a day but toward the end when we increased the dose, I very briefly did it 2x/day.
3) I do not do it anymore but did it for approx 5-6 months.
4) I am not really certain if I have MCS or if I sometimes get MCS reactions as part of my MCAS. But yes, my MCAS started after significant mold exposure in our prior rental. We no longer live there (moved in Sept 2015) and had to get rid of all of our belongings due to the high levels of mold but that is another story.
5) I assume that it raised my overall glutathione levels but was never tested for this (before or after) so I really do not know. My mold doctor very much wanted me to the the NutrEval test which I was not opposed to but honestly just never got around to it with everything else going on at that time. I still have the box so may do it some day.
Thank you very much if you could answer some of my questions.
No problem and happy to help if I can.
PS: Key Pharmacy in Washington State and McGruff Compounding Pharmacy in California also do nebulized glutathione, so if you're on the West Coast, the shipping costs may be lower for you than from Alabama.
My mold doctor said that the only two pharmacies she endorses for nebulized glutathione are Key and Wellness. I called Key and they would not disclose all of the ingredients to me and said certain things were a "proprietary formula" versus Wellness actually faxed me a list with all of their products and full ingredients and b/c of my MCAS, it was the safer choice. Forgot to mention, I also used the transdermal glutathione skin cream from Wellness in the plain Emu Oil base and was not allergic to it. This also had to be kept in fridge. Am not certain if there was any benefit from the skin cream but figured that it could not hurt.
Hope this helps!