soxfan
Senior Member
- Messages
- 995
- Location
- North Carolina
I was a patient of Dr. Komaroff briefly in 2011. Somehow I thought I had hit the jackpot when I had written him a letter and he accepted me as a patient. Anyway...he seemed very nice and caring...did a physical exam and took a lot of blood.
About a week later I received a letter from him with my test results and an explanation of his findings on my exam. He stated he could not positively diagnose me with CFS although I had many of the symptoms. He really gave me no helpful hints or any type of treatments but gave me a follow up appt. for 4 months later.
When I saw him 4 months later he spent a total of maybe 5 minutes with me. Wrote me out a prescription for Florinef and gave me another appt. for 4 months. He again offered nothing else in the way of treatments.
I never went back to the 3rd appointment as I felt he wouldn't have anything more to offer. Well I just received in the mail a survey from him about my symptoms etc. and questions on improvements or new problems. It seems kind of strange to me that I would get this from a doctor I only saw twice...3 years ago...and who offered me no support....treatments...or other testing to try and figure out what was going on with me.
Why would anything have changed since then if he wasn't treating me? I did fill out the survey in order to hopefully help others with this illness but still feel it was a strange thing to appear in my mailbox at this time. I do think he is very active in his research for CFS but also feel that he is not patient friendly. Maybe if I had gone back for another appt. something would have changed but since he did say I didn't fit the CDC criteria for CFS I am not sure what would have been different....
I just wish he would have dug deeper into why I have the symptoms I still have and maybe done some other testing other than the standard blood work....
I am not writing this to criticize him in anyway but I am just curious as to why I would have received this.....when I am not even a patient anymore...or really never seemed to be.
About a week later I received a letter from him with my test results and an explanation of his findings on my exam. He stated he could not positively diagnose me with CFS although I had many of the symptoms. He really gave me no helpful hints or any type of treatments but gave me a follow up appt. for 4 months later.
When I saw him 4 months later he spent a total of maybe 5 minutes with me. Wrote me out a prescription for Florinef and gave me another appt. for 4 months. He again offered nothing else in the way of treatments.
I never went back to the 3rd appointment as I felt he wouldn't have anything more to offer. Well I just received in the mail a survey from him about my symptoms etc. and questions on improvements or new problems. It seems kind of strange to me that I would get this from a doctor I only saw twice...3 years ago...and who offered me no support....treatments...or other testing to try and figure out what was going on with me.
Why would anything have changed since then if he wasn't treating me? I did fill out the survey in order to hopefully help others with this illness but still feel it was a strange thing to appear in my mailbox at this time. I do think he is very active in his research for CFS but also feel that he is not patient friendly. Maybe if I had gone back for another appt. something would have changed but since he did say I didn't fit the CDC criteria for CFS I am not sure what would have been different....
I just wish he would have dug deeper into why I have the symptoms I still have and maybe done some other testing other than the standard blood work....
I am not writing this to criticize him in anyway but I am just curious as to why I would have received this.....when I am not even a patient anymore...or really never seemed to be.