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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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IMO it is aused by excess drenaline due to POTS GavmanHas anyone helped their light/noise sensitivity by using certain products?
I hear low serotonin is a cause of it. Can anyone who has taken 5htp tell a difference?
Also as B6 seems to be needed for the conversion to serotonin maybe that helps?
I just remembered !!
I have found D Ribose helpful, in that it seems to help lessen inflammation in my muscles which seems to also help lessen PEM and I think because of this also helps ease abit of the neuro-sensitivity stuff. Worth trying but D Ribose doesn't seem to work for everyone though. I have found it a great help. Anything that helps abit is soooo good.
I just remembered !!
I have found D Ribose helpful, in that it seems to help lessen inflammation in my muscles which seems to also help lessen PEM and I think because of this also helps ease abit of the neuro-sensitivity stuff. Worth trying but D Ribose doesn't seem to work for everyone though. I have found it a great help. Anything that helps abit is soooo good.
for me it did otelp with noise sensitivityI just don't know anything about D Ribose.....is it important to buy a certain type?
What type would I get and how much of it/ dosage to try? Advice would be helpful.
Also wondering if any others have also found it helpful with noise sensitivity ?
I just don't know anything about D Ribose.....is it important to buy a certain type?
What type would I get and how much of it/ dosage to try? Advice would be helpful.
Also wondering if any others have also found it helpful with noise sensitivity ?
I take healthy origins form iherb - I may try a different brand tho as it does not give me any more energy, just relief for muscle aches which is enough tho I have been happy with this oneHi Raindrop
Actually I'm not sure how much of an affect D Ribose has on the light/noise sensitivities. I think it helped me more in the way of giving me a little bit more energy in the muscles which lessoned PEM inflammation overall which then I think lessoned a tiny bit of the neural. It definitely helped the muscles but not as sure about the neural side of it.
Ribose has been the most helpful thing I have tried without side effects. It doesn't suit everyone though unfortunately.
I take Drs Best D Ribose, 250g container, the powdered form. 1 scoop in the morning with food and 1 scoop in the evening with food. If you try, you should always take it on food.
There is a thread by Sasha, but don't know how to link to it.............D - Ribose - can it make you feel bad? It's in the General Treatment section. You can read other members experiences trying D Ribose.
Interesting a B12 is also essential in making connective tissueLack of vitamin A is known to cause light sensitivity as well as the vitamin B´s (including B12).
Interesting a B12 is also essential in making connective tissue
come to think of it y photophobia is better after months on B 12 injections
and vit D involvement?
Ally
Hi Rosie. It didn't help me much. Actually it lowers bloodsugar which wasn't the best for me . I could try it again cause at the time I was using chrome which also lowers it . So maybe it was too much at the time.@Grigor Did you try ALA ? How did you get on - did it lessen light/noise sensitivities for you.
Have you or anyone else here actually tried the suggestions for 10mg Lutein and 2mg Zeaxanthin per day
for light sensitivity?