Little Bluestem
All Good Things Must Come to an End
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I(83%)N(56%)T(12%)J(67%). This is from the online MB facsimile that was posted here a while back.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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For now I'm waiting on results from the snot culture, bartonella test, CRP, ESR, and iron from the GP.
I am another INTJ.
Do you get the feeling that that some individual animals are introverted and some are extraverted, like people? Or would that be anthropomorphizing?
Yeah, it does seem weird. The symptoms are being taken seriously (by my GP at least), but then it seems like I'm being blamed for having them when she talks about focusing on symptoms too much. It just doesn't make any sense.
I think part of the problem might be that GPs aren't equipped to handle chronic illness. It's either acute or it's not their problem. And when acute problems arise (possibly due to the lack of proper preventative/diagnostic specialist care) it's mixed in with chronic problems which they can't even begin to untangle.
So I think they end up in an impossible situation, which can provoke a wide variety of dysfunctional responses. I shouldn't complain though - at least my GP is willing to see me and test stuff
I agree completely with what you said here.. GPs do seem to be able to handle acute things better then chronic ones in my experience too (LOTs of experience in doctors lol). The irronic thing is that when we do end suddenly having very major symptoms and have to go to the ER due to them, we are often told that they wont help as our illness is "chronic" and to "go and see your GP/MP".
Those with our illness just fall into a big hole in the medical system.. a hole in which specialists are not being trained to deal with us, doctors cant handle our chronic illness and hospitals wont help us even when someone flares and gets extreme as they arent for those who have chronic illness. A system which hugely lets us down and then wonder why we are such an upset patient group... doh.
INTJ
Hi, INTP here! Married to one, too... means a couple of wacky nerds that never get anything done!
I had this for seven years running when my doctors was telling me "I was too aware of my symptoms" or "one things at once". Took me 12 years to get diagnosed because he was missing the big picture. What kind of idiot would knowingly tell a doctor half their symptoms, or idiot doctor want to hear incomplete symptoms.I had an appointment today that I thought was with my usual GP, but was with the other one (they're both part time). They're both quite intelligent usually, but she seemed to be in a bit of a mood this morning
I've had 5 or 6 symptoms all appear at the same time over the past week or so. She wanted to look at EACH symptom as a SEPARATE BLEEPING PROBLEM. And then she bitched about me having too many symptoms at once since the appointment wasn't long enough to deal with all of them.
Okay, for the dimwitted and/or cranky-in-the-morning doctors out there: 5 BLEEPING UNCONNECTED PROBLEMS DO NOT ALL APPEAR AT ONCE. Apparently I have an antibiotics reaction (starting 5 weeks after finishing them), allergic rhinitis (tested negative to pollens and such), stretch marks from being fat (no weight gain in years), constipation causing stomach pain (15 minutes after I had a normal BM), joint pain on one side of the body (we just ignore unexplained pain if there's no swelling or redness), and increased full body swelling (right, maybe we can ignore swelling after all) all magically appearing at the same damned time!
And I didn't even mention my sore throat, oxygen, and heart rate problems
But golly, when a ton of symptoms all appear at exactly the same time, do you think it's POSSIBLE that they might have ONE underlying cause? When you try to make each symptom into a separate diagnosis with a separate analysis and treatment, don't bitch to me about coming in with too many problems! It's probably one problem, but you want it to be five simple problems, and that's your bleeping issue, not mine.
Seriously, how does a GP even deal with a normal case of flu with this mindset? "Oh, you have body pains? Exercise helps with pain, try some of that. And a fever? You need to turn down your thermostat. What, you feel exhausted too? I don't have time to deal with that, I already addressed two of your problems. Make another appointment if you want to discuss anything else."