everything went well really, Since methylcobalamine I slowly inched up. Was able to take the stairs in the daytime, found that sometimes I go down the stairs without holding the rail. OI was clearly less, slept better, started walking outside most days ( 5 to 8 minutes)
as I told friend, as if I've gone from 3% energy to 6%, may not look much from the outside, for me it is double. Very careful not to overdo, jotting down sleepquality/symptoms and things done.
then some days ago I started to deteriorate, but it's not the usual PEM, with PEM i always have sore throat and swollen lymphe and totally unable to fall asleep.
First i got constipated again, so took a little extra magnesiumcitrate, problem solved, then I found that I was a little nauseous, not too bad though. Such is life.
Then I woke up after 2 hours sleep, could not get back to sleep and felt real bad...that dead feeling in the body, the heart doing all kind of strange things etc...scary...I do not want that again. then I needed to crap so went down the stairs. After that i could hardly stand so crawled into my downstairs bed. No sleep...just that awful hell of everything coming back. So whole day on my lazy chair reading
the night after I slept quite well but had very dark poo in the morning, reasonable day, keep calm, don't do things, rest and wait.
So tonight I again had a very bad night, this morning a had a sort of musclecramp in the calves, but very different as the usual thing. Now I can hardly stand/walk. It is as if my calves can't keep it up.
And (almost) black poo, getting softer and softer and hurting my but, as if it is acidic.
Plus brainfog much more then usual.
But is not PEM, unless PEM has taken a brandnew way to present itself
Is no new virus either, then I would feel really ill, no abdominal pains either.
so it's strange, if there's someone outthere who can relate to this I'd be interested to hear her take on this.
I suppose it will go away after some time ( i do hope so anyway) but would like to know what it is.
( Visitor I had today told me I should call GP because I'm hardly able to walk ...I told him I save up the GP for hen I'm really worried... )
as I told friend, as if I've gone from 3% energy to 6%, may not look much from the outside, for me it is double. Very careful not to overdo, jotting down sleepquality/symptoms and things done.
then some days ago I started to deteriorate, but it's not the usual PEM, with PEM i always have sore throat and swollen lymphe and totally unable to fall asleep.
First i got constipated again, so took a little extra magnesiumcitrate, problem solved, then I found that I was a little nauseous, not too bad though. Such is life.
Then I woke up after 2 hours sleep, could not get back to sleep and felt real bad...that dead feeling in the body, the heart doing all kind of strange things etc...scary...I do not want that again. then I needed to crap so went down the stairs. After that i could hardly stand so crawled into my downstairs bed. No sleep...just that awful hell of everything coming back. So whole day on my lazy chair reading
the night after I slept quite well but had very dark poo in the morning, reasonable day, keep calm, don't do things, rest and wait.
So tonight I again had a very bad night, this morning a had a sort of musclecramp in the calves, but very different as the usual thing. Now I can hardly stand/walk. It is as if my calves can't keep it up.
And (almost) black poo, getting softer and softer and hurting my but, as if it is acidic.
Plus brainfog much more then usual.
But is not PEM, unless PEM has taken a brandnew way to present itself
Is no new virus either, then I would feel really ill, no abdominal pains either.
so it's strange, if there's someone outthere who can relate to this I'd be interested to hear her take on this.
I suppose it will go away after some time ( i do hope so anyway) but would like to know what it is.
( Visitor I had today told me I should call GP because I'm hardly able to walk ...I told him I save up the GP for hen I'm really worried... )