viggster
Senior Member
- Messages
- 464
Just thought I'd let folks know I started IVIG this week. Two grams per kilogram induction dose followed every three weeks by 1g per kg. This is the emerging dosing schedule used for small-fiber neuropathy. If you download the latest "IG Living" magazine (yes, it's a thing!), there's a short article on the growing evidence for IVIG in small-fiber neuropathy. I do have biopsy-confirmed SFN and biopsy-confirmed inflammatory myopathy, meaning my immune system is inside my muscle tissue causing damage.
http://www.igliving.com/
When I got sick 5-6 years ago, I stopped sweating. Well, today I woke up with natural BO for the first time since then. I think it's pretty clear my autonomic dysfunction is autoimmune and I'd say the overnight pit-sweat is a sign that IVIG has begun to work. At least that's how I'm interpreting it.
I'm on regular Medicare + a secondary insurance policy, so all my doctor had to do is write a letter to Medicare. No prior authorization required. I'm not sure how many doses of IVIG I'll be able to get before Medicare starts asking questions. We'll see.
http://www.igliving.com/
When I got sick 5-6 years ago, I stopped sweating. Well, today I woke up with natural BO for the first time since then. I think it's pretty clear my autonomic dysfunction is autoimmune and I'd say the overnight pit-sweat is a sign that IVIG has begun to work. At least that's how I'm interpreting it.
I'm on regular Medicare + a secondary insurance policy, so all my doctor had to do is write a letter to Medicare. No prior authorization required. I'm not sure how many doses of IVIG I'll be able to get before Medicare starts asking questions. We'll see.