Ecoclimber
Senior Member
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CEO of CAA-CFIDS-Solve/CFS, it's the same o' same o'. When their leadership make -won't say earn - $ six figure incomes while the small remainder goes to irrelevant 'research' programs over the last 15 years, I say you have a cash cow for those in leadership positions. After Kim McCleary departure and Carol Head as the new CEO, It's comparable to rearranging the deck chairs on the Titanic while at the same time trying to build them stronger and with better material. The fact remains, you still on the Titantic.
With that being said, I am not sure that petition is very effective given the fact that another petition was tried in 2011. When the HHS ignores the petitions of most of the ME/CFS researchers and clinicians, patient advocates and lawsuits and FOIA requests from patient advocates, we have a rogue HHS/NIH/CDC. They are going to dictate their own terms. A patient 'advocacy' group such as Solve/CFS provides a symbiotic relationship that makes their actions appear in the best interest of the patients.
With that being said, I am not sure that petition is very effective given the fact that another petition was tried in 2011. When the HHS ignores the petitions of most of the ME/CFS researchers and clinicians, patient advocates and lawsuits and FOIA requests from patient advocates, we have a rogue HHS/NIH/CDC. They are going to dictate their own terms. A patient 'advocacy' group such as Solve/CFS provides a symbiotic relationship that makes their actions appear in the best interest of the patients.
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