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Has anyone tried this, or have any experience / literature of their affect when administered together?
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Just tagging in @Gingergrrl she's the one to ask on this one
I have a question for you, @Gingergrrl , how did the doctor exclude possibility of chronic bacterial infections, in your case? I mean, since all tests are not very reliable, like bartonella, even by Galaxy.
And do you know if this is a major dealbreaker for rituximab? I am confused because I know they give it to PANS children, who have it from lyme/bartonella... but yet I hear you cant have it if you have suspected chr bacterial infections. Hmmm... it is much more affordable than IVIG, so I wish i could do it :/
@kms1990 I am still in the middle of doing IVIG and Rituximab together, and can answer any questions you have re: my experience, but I do not have any literature re: the affects of using the two together.
The average interval from start of Retuximab and a clinical response was approximately 6mo. This information was available from the phase 2 trial from Mella/Fluge. There were a few who responded by week 10-12. The maximum level of improvement was seen between 6-12 months.Thanks! How far along are you with Ritux? Have you noticed any adverse affects since beginning?
Based on what I have read about b cells ect it seems positives impact would start showing up a few months in, maybe faster if you also have IVIG eating up "bad" antibodies previously produced by the now depleted b cells.
Thanks! How far along are you with Ritux? Have you noticed any adverse affects since beginning?
Based on what I have read about b cells ect it seems positives impact would start showing up a few months in, maybe faster if you also have IVIG eating up "bad" antibodies previously produced by the now depleted b cells.
The average interval from start of Retuximab and a clinical response was approximately 6mo. This information was available from the phase 2 trial from Mella/Fluge. There were a few who responded by week 10-12. The maximum level of improvement was seen between 6-12 months.