Hello,
I'm advocating for my daughter who has CFS, FM, POTs and IBS. She was tested for 2 genetic variations of MTHFR and was found to be compound heterozygous for both A1298C and C677T. A traditional, hospital testing lab performed this test. Since she hasn't responded to some methylfolate that a practitioner has suggested, I thought it would make sense for her to get other mutations tested such as SOUX, COMT, etc.
My question is what reliable labs are there that we could get these other potential gene variants tested? I have seen various researchers recommend 23andme, but I have also seen other people commenting that the recommendations that 23andme provides can be contradictory or too generic to be useful. I've see other posts that have said that the value in the $99 gene test is not the recommendations you get from 23andme, but the actual analytic results so you know if you are positive for COMT, etc.
I have some other family members who are very skeptical about "what you get" for a test that is only $99 dollars. They have also seen some dubious posts about places like 23andme, so I would hope that there other forum members are at least aware of some endorsements from recognized CFS docs. This would end some legitimacy to others' recommendations.
Thank you very much in advance for your feedback.
Scotty81
I'm advocating for my daughter who has CFS, FM, POTs and IBS. She was tested for 2 genetic variations of MTHFR and was found to be compound heterozygous for both A1298C and C677T. A traditional, hospital testing lab performed this test. Since she hasn't responded to some methylfolate that a practitioner has suggested, I thought it would make sense for her to get other mutations tested such as SOUX, COMT, etc.
My question is what reliable labs are there that we could get these other potential gene variants tested? I have seen various researchers recommend 23andme, but I have also seen other people commenting that the recommendations that 23andme provides can be contradictory or too generic to be useful. I've see other posts that have said that the value in the $99 gene test is not the recommendations you get from 23andme, but the actual analytic results so you know if you are positive for COMT, etc.
I have some other family members who are very skeptical about "what you get" for a test that is only $99 dollars. They have also seen some dubious posts about places like 23andme, so I would hope that there other forum members are at least aware of some endorsements from recognized CFS docs. This would end some legitimacy to others' recommendations.
Thank you very much in advance for your feedback.
Scotty81