Somebody sent me this and said I could post it where I wanted:
https://www.dropbox.com/s/lc9kmqbxcsuiilg/Esther Crawley inaguaral compressed.mp3?dl=0
Here are some informal notes that somebody made:
https://www.dropbox.com/s/lc9kmqbxcsuiilg/Esther Crawley inaguaral compressed.mp3?dl=0
Here are some informal notes that somebody made:
[A few quotes pulled out - very partial, and may be a bit rough]
Lots of Wessely-style attempts to emphasise how terrible things were for those with CFS before she started trying to help (strangely no mention of her role in NICE).
Talks about motivations for research - sounds like it's all about trying to get money for services, which is how her papers read.
13:20 - George Davey Smith and Peter White helped her start getting grants for her work.
26:30 - starts talking about treatment. [roughly]"I've reviewed the world's literature and I can tell you that if children get specialist medical care then 2/3 will recover at six months, and this compares to less than 10% for those who don't get specialist treatment"
"Using ALSAC, which is less severe kids, not the ones that I see in my clinic, after three years still about 25% have not recovered. And not recovered means missing out on life, there's not many illnesses that do that."
27:30 - "And the issue for me, and the thing that I've struggled with over the last few years, is the lack of service provision."
29:10 - Talks about her three trials. SMILE trial "a lot of children and families asked us to do this trial" - so it was there fault money was invested in quackery?
32:20 - Starts talking about opposition. "These people have never talked to me. They've never asked what we're doing. They don't look at the data we've publicised about what children think about graded exercise therapy [...?] that protocol's on-line."
33:00 - "So the abuse for me first started with the SMILE Trial, so this is looking at the Lightning Process, and children and parents coming into clinic telling us a lot that it worked, so that it didn't, or a lot that it didn't, and we didn't know whether it worked or it didn't but I thought we should find out. I got so much abuse we went public about it in the end and I just love this quote... [laughter]. And you know, the problem is that if you do this kind of stuff then people leave, researchers leave, even researchers looking at viruses, they all just leave. This is the things that really annoyed me actually, I was accused of using children as guinea pigs. I actually got hte Church Times to run an apology, heh. But this is in the Church Times. Reported to the NSPCC. Reported to the GMC. I'm always being reported to the GMC, it's kind of standard now. In fact I'm in a six months window when I'm not currently reported to the GMC. Ahh... this is good. What's funny about this is the e-mail said 'I'm going to cut your balls off' - sorry. 'Prepare to meet your maker.' Okay. Undeterred, I decided... [more about GETSET].
37:00 - Some vague talk about on-line stalking.
43:00 - Gets given flowers from AYME on behalf of every single child she's treated in clinic and done research for.
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