Esther12
Senior Member
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I think they most likely think "getting people to behave normally" (my words) is the answer and looked around for reasons to claim it might work.
I think you could well be right. And they seem genuinely bemused as to why patients feel that they're not being treated with respect/
Yes. Of course, they have actometers and when they got AfME to agree to it in 2001, they were using actometers at the end as well as at the start. But somewhere along the way, they dropped the actometers at the end (so we don't know if people are actually doing more) although still get the patients to wear them for a week before the trial.
The PACE Trial is costing 5m while the FINE Trial cost a mere 1.3m.
I'm sure you know more about the details than I, but I'm still struggling to believe they could really spend that much money on PACE without collecting the sort of data that would be of interest to those sceptical about GET and CBT. If I were them, I would want to desig trials that had a good chance of proving my ideas wrong, or else over-coming the objections of those who disagree with me. Not many CFS researchers seem very good at this.