Firestormm
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According to Cort's piece on Klimas and Sol they are talking more 'activity management' style 'exercise' and deconditioning here; and Newton was also talking similarly although she didn't talk about deconditioning specifically.
As there is currently very few ways of treating people with the condition CBT and GET are recommended (along with Activity Management) simply because of this lack of anything else and a lack of aetiology.
I am talking about I suppose the NICE Guideline and it's recommendations in the absence of anything better, i.e. that CBT, GET and Activity Management are by and large the only treatments for the condition as a whole.
Specific drugs for symptom management are not listed of course but NICE do refer to this as being something a doctor should do in clinic on a patient-by-patient basis i.e. not every drug is deemed appropriate for all patients.
Similarly if a drug is developed for say, this acid in the muscles issue, then said drug might not make it into NICE if it only helps or is deemed appropriate in certain patients/circumstances.
The more research enlightens us and the more we are 'streamlined' and our symptoms explained, the less need there will be for CBT and GET. But they will still be there.
People will still need help in learning to cope with 'life' with a chronic condition (if there is no cure) even with better treatments. And 'exercise' strategies will not go away - far from it. But they will perhaps be 'toned-down' and more tailored.
Cynical old me might say that those in support of these two methods have sold them so well throughout medicine (not just for ME) that they will always be part of the 'kit-bag' for doctors to indicate.
I am concerned that from Cort's write-up he is suggesting (correct me if I am wrong here) that deconditioning is responsible (in whole or in part) for autonomic nervous system dysfunction i.e. that long periods of bed-rest and/or sedentary periods are thought to cause these issues.
Unfortunately, for Klimas, we have no evidence to work with. And as Simon had commented in the comments beneath that piece, all the 'evidence' thus far appears to have shown that we are no more 'deconditioned' that anyone else.
If/when Klimas can better explain this deconditioning I shall be all ears - but it smacks to me of the old 'blame the patient game'. Though I'm probably being unfair.
One thing does appear certain, the 'exercise' that Klimas is describing is along similar lines to that which I think Newton was talking about. Gentle movement and stimulation i.e. anaerobic and not aerobic.
Personally, I shall follow the science. See where it leads and not read too much into Cort's summary at this point.
Edit:
I see Cort's piece gets coverage here: http://forums.phoenixrising.me/inde...oning-exercise-in-me-cfs-on-corts-blog.21504/
As there is currently very few ways of treating people with the condition CBT and GET are recommended (along with Activity Management) simply because of this lack of anything else and a lack of aetiology.
I am talking about I suppose the NICE Guideline and it's recommendations in the absence of anything better, i.e. that CBT, GET and Activity Management are by and large the only treatments for the condition as a whole.
Specific drugs for symptom management are not listed of course but NICE do refer to this as being something a doctor should do in clinic on a patient-by-patient basis i.e. not every drug is deemed appropriate for all patients.
Similarly if a drug is developed for say, this acid in the muscles issue, then said drug might not make it into NICE if it only helps or is deemed appropriate in certain patients/circumstances.
The more research enlightens us and the more we are 'streamlined' and our symptoms explained, the less need there will be for CBT and GET. But they will still be there.
People will still need help in learning to cope with 'life' with a chronic condition (if there is no cure) even with better treatments. And 'exercise' strategies will not go away - far from it. But they will perhaps be 'toned-down' and more tailored.
Cynical old me might say that those in support of these two methods have sold them so well throughout medicine (not just for ME) that they will always be part of the 'kit-bag' for doctors to indicate.
I am concerned that from Cort's write-up he is suggesting (correct me if I am wrong here) that deconditioning is responsible (in whole or in part) for autonomic nervous system dysfunction i.e. that long periods of bed-rest and/or sedentary periods are thought to cause these issues.
Unfortunately, for Klimas, we have no evidence to work with. And as Simon had commented in the comments beneath that piece, all the 'evidence' thus far appears to have shown that we are no more 'deconditioned' that anyone else.
If/when Klimas can better explain this deconditioning I shall be all ears - but it smacks to me of the old 'blame the patient game'. Though I'm probably being unfair.
One thing does appear certain, the 'exercise' that Klimas is describing is along similar lines to that which I think Newton was talking about. Gentle movement and stimulation i.e. anaerobic and not aerobic.
Personally, I shall follow the science. See where it leads and not read too much into Cort's summary at this point.
Edit:
I see Cort's piece gets coverage here: http://forums.phoenixrising.me/inde...oning-exercise-in-me-cfs-on-corts-blog.21504/