The estimates first off result in people running around for multiple years trying to get diagnosed.
Second specialists are saying that many are not disgnosed.
3rd prevelance has been estimated between .002% to .01% of the overall population.
Dyautonomia or OI may account for one large subset.....based on symptom profile and virutually identical symptom overlapp.
Canada with half the people of Britain has much higher statisical prevalence. Could be misdiagnoses which I believe to be the case but also we have had the CCC Criteria available since 2011.
I am sorry but anything that has come out of Britain including the PACE trial and patient care has led to the world adopting dangerous treatment for ME/CFS patients. I personal feel they lied to the world.
Further. Dr Ramsays discussed ME in the 40 or 50's as a Neurological condition and yet despite the WHO classifying ME as a Neuro Condition. Ramsay from Britain identified named ME. Based on the severity of the diseases it was not studied thoroughly. Yet Simon Wessley and a large Cohort of Psychiatrists, Psychologists and others have had this illness treated as a psychsomatic illness. For many years prior to PACE from what I understand. This gives me more reason to distrust the statistical data from Britain make appear as a smaller problem than it really is. Please note I am not discounting the US for messing this up in the 80s either.
The Canadian Clinic in 1 Province has an 18 month wait list....if the amount of patients coming in per week from what I have been told is rediculous. This does not even include severely ill.
I am not saying Britain is horrible as I know people there are doing good things. Great things with the new biobank.
On the balance of scales I cannot agree with the figures coming out of Britain because of how ME had/has been treated there and the influence it has had on the globe...
I believe underepresenting by Britain highlights the the lack of urgenency and need for help...
I cannot forgive this....I cannot forgive what the US did and currently what Canada is doing which is virtually "nothing"....