Interesting post by Jennie on this:
http://www.occupycfs.com/2013/10/10/convergence/
Particularly valuable analysis given the plethora of voices and positions that we now have on this situation.
Thanks,
jspotila!
I cant get throu much of her post at all right now so probably will make more comments on it in the further.
I do want to comment thou on this part
Fourth, Dr. Bateman published a statement explaining why she was
no longer supporting the Experts’ Letter on September 30th. Her statement came after a flurry of rumors that the Association had asked the thirty-five expert signatories to change their position (
the Association denies this). The bottom line is: 1) the CCC is the best we have but it is not good enough and needs to be updated; 2) the IOM contract could lead to increased validation and federal funding; and 3) we should actively call for experts on the IOM panel and regroup if the panel falls short.
If the CCC isnt good enough, well they shouldnt be creating new definitions anyway as there is enough of them out there now!!! If the CCC isnt good enough then if that person was supporting us, they'd be calling for the International consensus ME criteria to be adopted. Anyone supporting less then those things, I dont see as being a good support for us at all. WE DO NOT RIGHT NOW NEED ANY NEW DEFINITIONS OUT THERE We have the CCC one, and if that one isnt good enough, there is the International consensus ME criteria... what kind of criteria is Dr Bateman wanting to be used if neither of those are good enough?
Creating a new criteria for no reason at all, means huge risk to us. If the gov have that much money to throw around a waste, why dont they put it into good ME studies.
Secondly.. that 3rd point is bullshit. How on earth would we fix things if the panel falls short??? Have the GWS people managed to fix what was done to them? I bet they are trying hard too and they have stronger support and are more together then we are. This whole thing sounds like some kind of con to try to convince people things would be fine when there is no way it would be if the panel fell short.
It just isnt a case of
try this and if it dont work out we can then sort it out as is being implied
.
We need to not back down on this and must not play into the games out there as it will only leave us screwed. I have no doubt about that.
Our orgs need to stay strong and not back down to support a new definition being done at all, as that is only playing into the hands who have already decided what is going to happen. They need be helping us to protest and keep protesting even if that panel goes ahead.. they need to refuse to be on committee to form a new defination as a new one isnt needed... they need to keep calling for the CCC to be adopted!!!
Any of our orgs who back down just to get their members on the panel.. I will say in advance are being terribly stupid and will be letting us all down and I can not respect naive orgs like that. As the outcome has already been planned and its not in our favour, its already been set up with biased and on that panel they WILL be outnumbered by the psychs etc and those who support that view. They have no goal to play fair and we have ALREADY been shown this.. so why would any of our orgs want to enter the dragons lair like Simpson and the Goliath (but I doubt there would be a right outcome!), when we need them to be strong for us.
I wouldnt trust Dr Bateman being put on that panel either at this point.. as obviously she isnt happy with either the CCC or that the ME definition, which would help to take us away from the psych field. So where's her head right now? (I'm even wondering if she could of been bought off at this point or offered a position on that panel). Why back down.. she's like a sheep following a flock (or whatever pressure is there) and letting the other sheep around her affect her. No matter her true views on ME/CFS, I dont see her at this point as being strong enough to be put on the OMI panel (im wondering if they will try to do that to condole us some or just bring in a few of our ME experts , but not enough to affect that outcome thou).
No matter who they are going to put on that panel thou..what "
bribes" they could end up offering us, we need to still be strong and keep calling for CCC to be adopted at this point after what has already gone on.