Dear
@Jonathan Edwards,
@minkeygirl,
@Large Donner, @L’engle,
@Richard7,
@barbc56,
@Snowdrop,
@Valentijn,
@sarah darwins,
@taniaaust1 @CFS_for_19_years,
@Sea @MeSci @snowathlete @TiredSam, @Iansbergen,
@Mij
Thank you for all of your comments and for the helpful names and links with further information.
My intention is to do a fairly simple project on CFS, and I appreciate that, as with most research, there are a host of weaknesses that need to be addressed. I am thankful for your comments so that I can discuss them in the report, for example looking at people with fatigue rather than CFS.
If you are interested, I’m a part time postgraduate diploma student, which means that I’m doing the equivalent course as an undergraduate.
My aim is just to get this study done and get through the course. I am struggling with symptoms myself, so just being able to hand something in is my goal. At the same time, I wish to learn more about CFS/ME and online forums as they have helped me, personally, though of course there are other things they don’t do because it’s online.
I know there is so much more research, which you all seem to be very knowledgeable and up to date about, and clearly there will be issues with the study at this level. In terms of usefulness, I wanted to at least raise awareness around the topic with my tutor.
I’m just trying to do my best given that last year I struggled to write an email.
If you would like more information on the theories I’m looking at in addition to the information given on the information sheet which comes up when you click the link, please see the debrief at the end of the questionnaire. The term wellbeing is used in the literature as it covers various positive psychological outcomes, but I’m specifically looking at life satisfaction.
Again, the plan isn’t to tell anyone to do anything in the report, just to discuss the data in a careful and considered way and raise some points for further discussion.
I am not funded by anybody to do this, but doing it as part of the psych diploma course. I understand why people are very cautious and that even doing the survey may make symptoms worse, so of course, if that’s the case, please don’t feel obliged to take part and thank you for your time.
Thank you.