knackers323
Senior Member
- Messages
- 1,625
Hi people is there a good writer out there that is up to writting a letter to Richard Branson or someone similar asking them to get involved in getting some proper exceptance and research into cfs/me.
Maybe if we coukd write a draft letter which we coukd then send to everyone we can think of that is in a position to help.
We could either get one ketter with many signatures or just bambard them with individual letters.
We have to do something, we have been very patient for a very long time and are sikently losing our lives.
I just read some of @Derek Conklin story and it is a total disgrace that society, medical profession, governments allow this sort of thing to happen. And Derek is far from the only one. I've read of children going through the same thing and nothing gets done, meanwhile millions of dollars get wasted/spent every year on illnesses and causes that are much less extreme and less deserving than CFS.
When will this end? At the moment, as positive as I try to remain for those with CFS, the current future is bleak.
We need to make something change. We need a big advocate.
Thoughts?
Maybe if we coukd write a draft letter which we coukd then send to everyone we can think of that is in a position to help.
We could either get one ketter with many signatures or just bambard them with individual letters.
We have to do something, we have been very patient for a very long time and are sikently losing our lives.
I just read some of @Derek Conklin story and it is a total disgrace that society, medical profession, governments allow this sort of thing to happen. And Derek is far from the only one. I've read of children going through the same thing and nothing gets done, meanwhile millions of dollars get wasted/spent every year on illnesses and causes that are much less extreme and less deserving than CFS.
When will this end? At the moment, as positive as I try to remain for those with CFS, the current future is bleak.
We need to make something change. We need a big advocate.
Thoughts?