I have a few issues by now complications of the CFS, I developed POTs too and I have colitis, But my relapses were all triggered by exercise, I remember exactly each one, I have been on kind of remissions like 3 times.
First time I did pull ups on a bar. Second, I did a video Gillian (the lady from the biggest looser), the third I tried to run.
I do not handle aerobic, every time I go heavy aerobic I relapse, now I have other things like stomach bug, the fall, and other things that will crash me, specially every fall, no matter what I do, I relapse.
I take a lot of energy things by now and I respond well to the classic ones: COQ10, D-ribose, ALC w ALA. I added a few PEM boosters lately but I am on a bad patch right now, I was doing great before this crash, I think I was exercising too much again. I can handle about 30min of recumbent bike but I have been pushing 1h + some my own body weight strengthening exercises (cant let things hang!).
I have a hate love relationship w exercise you would ask why! well if I don't exercise I plateau the only way I get better is by exercising (be aware my POTs is worst than my CFS). but exercise is good for POTs but bad for CFS, let it to me to get 2 mutually exclusive diseases!
My doctor has my CFS mostly controlled. I am on antivirals + immune mods.[/QUOTE
What is the best suplement you recomend??i order D-ribose,L-carnitine and L glutamine..I am definately not an expert ,but i've done a lot of research latelly and i wonder ..is not possible that you have jsut POTS? wich defiantely can cause the fatigue aswell??