@Sallyagerharris Thank you so much. Right now I don't believe that I clearly understand all of the risks that Prof. Edwards was alluding to in our correspondence, but so far, I haven't read too much else that has caused me to believe that this is very likely. I contacted the Dr. Montoya's office and after they receive my records and referral from my dr, they're booking 6 mo-1 yr out. I asked if there was any other way to learn if he/OMI use a different treatment protocol than what my dr is planning, but I was told that he generally won't speak with a future patient's dr. This means I'd have to wait 6 months- a year to talk to him and fly from RI to CA to do it. I also called OMI and learned they do not participate with health ins. (including Medicare), so the cost of flying out staying overnight and having my first appointment two appointments (bf having tx) would be roughly 1 year of income beef expenses.
I made a phone appt to go over my concerns with my ME dr, but the most helpful thing was that I got to talk with someone at the office that administers RTX and I got a good feeling. They said that if Medicare was going to deny
the claim, that it would have already happened so I will have part of the tx covered. I also learned that it's a good idea or me to have a flu vacs about 1+ month bf treatment. Most importantly, my dr works extensively researching and treating pts with autoimmune disorders. I feel much more at ease, though I'm going to give it a little more time before I make new plans to move.
I hope this post was helpful for other pts.