Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Does anybody with ME or cfs whatever you wanna call it, have pins and needles in their feet? Is it actual nerve damage or reversible?
wait a minute somebody just said it's not common in ME and you're saying the exact opposite. It can't be both can it?Yep, my neuropathies were so bad I was convinced I had MS. But nope, ME. Not sure what causes it but after 4.5 years it's mostly gone away (I still notice it from time to time). I think it's fairly common in ME.
If you look at a list of common symptoms of CFS/ME, pins and needles is not listed. Just because a person with CFS has an issue with pins and needles does not necessarily mean that it is related to the CFS. It is possible to have more than one medical issue happening at the same time. For instance I have developed arthritis pain in the last few years, however, I am not not claiming that my CFS is getting worse. There is absolutely no relation between the two. I have both CFS and arthritis. Two completely different things.wait a minute somebody just said it's not common in ME and you're saying the exact opposite. It can't be both can it?
Well for me, this symptom has improved over the past few years. I don't think anyone knows why it happens (lack of research) but someone please correct me if I'm wrong.Is the pins and needles from ME progressive? Is it actual nerve damage or what's the reason for it?
what exactly were your symptoms? Was it actually pins and needles?Well for me, this symptom has improved over the past few years. I don't think anyone knows why it happens (lack of research) but someone please correct me if I'm wrong.
Yeh but I'm also getting it in both hands occasionally. It doesn't seem typical of spinal compression