• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Peter White complaining about PACE Trial FOI request and calling for changes to FOI laws

Esther12

Senior Member
Messages
13,774
Did anyone ask for minutes of meetings? I'd agree that would be a pain. No one really takes minutes of conversations had in deciding the particulars of how to run a study. However, any relevant decisions should be detailed in the paper itself. And data should be free for the asking.

Yes. Some minutes have already been released, and they have been helpful for understanding the decision making that was taking place at the time.
 

Snow Leopard

Hibernating
Messages
5,902
Location
South Australia
Is it? An important principle of science is that researchers have a secret 'safe space' where they get to make decisions that have an important impact upon the lives of others, free from independent scrutiny? Who came up with that principle?

dr evil.jpeg