A.B.
Senior Member
- Messages
- 3,780
The story of the PACE trial from the patient perspective is spreading
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
It's actually going to end in my lifetime isn't it? (38 soon, so not setting my sights too high)The story of the PACE trial from the patient perspective is spreading
Just saw this one:
It's actually going to end in my lifetime isn't it? (38 soon, so not setting my sights too high)
Yeah. Show me the writs and I'll believe it.It will be over soon. They will appeal and lose. The data will be published, and PACE will be torn to shreds.
I hope that then, public awareness will increase, more critics will find the courage to speak out, and the CBT/GET empire will be questioned. Developments in the US and biomedical science will further increase pressure on politicians and they will eventually have to stop supporting CBT/GET. PACE authors will be isolated and go down in history as frauds. Mass lawsuits for GET inflicted harm are not out of the question.
And how about a Panorama or Horizon program on the BBC.
I don't know what angle they covered in that one, but I would be hopeful if they covered the BPS angle of deceit and fraud and profiteering at the expense of ME patients it might do something ?They did a Panorama on ME in children years back. Pretty damning. Changed bugger all.
No. It would come down to an argument about science, with lots of big names prepared to stand behind them. Wait till we see the data is what I think. Then maybe.I don't know what angle they covered in that one, but I would be hopeful if they covered the BPS angle of deceit and fraud and profiteering at the expense of ME patients it might do something ?
No. It would come down to an argument about science, with lots of big names prepared to stand behind them. Wait till we se the data is what I think. Then maybe
Didn't @charles shepherd say that the BBC was doing a documentary now? My assumption is that it's a SMC style propoganda piece for Wessely & co, but it could be that will change as the consensus on PACE shifts....
I personally wouldn't trust Panorama to cover a sofa - not the fair unbiased programme it used to be sadly.I don't know what angle they covered in that one, but I would be hopeful if they covered the BPS angle of deceit and fraud and profiteering at the expense of ME patients it might do something ?
One part of me wants them to continue to be obstructive and difficult with the PACE trial data as it just brings more 'n more attention to this scandal.
Very important comment.I think its important to remember the big picture.
We want to get better and that can only be achieved through good biomedical research.
PACE is a distraction that we need to eliminate, the sooner we do so the better.
The energy we spend fighting PACE would be much better spent fighting for more funding for biomedical research.
It will be enjoyable to witness these peoples downfall for sure, but ultimately we need a lot more than that.
PACE is only round 1 of the fight, the sooner its over the better for all.