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Can anyone advise me about general management of my ME and pacing so I can avoid crashes?
Almost every week I end up crashing at some point, but often find it hard to identify what has caused it. Sometimes I get so fed up with trying to figure it out and feeling bad because I'm wondering if I've unintentionally overdone it again that I just conclude that it's just the illness and not anything I've done. Sends my head in knots sometimes.
This week I've tried to pace myself - I'm a mum so always have to do school run and keep things going between 3:30 and 7pm. But during the day I've been resting lots and walking less than I normally do. I've tried to keep my activities to no longer than an hour at a time - computer time, adult colouring etc.
On Wednesday my eldest son had a guitar exam. I managed to arrange a lift for us from a friend as I knew driving myself would have been too much. But saying that it did mean I had to spend the morning being sociable to my kind friend who helped. Then yesterday he played guitar in assembly which I went to for an hour.
The only other thing this week is that I've spent an hour writing the last two mornings. I used to blog and have wanted to restart it to give me a feeling of purpose again.
So today I'm feeling fluey with PEM. I'm wondering have I done too much, was it guitar exam Wednesday and assembly yesterday, or is it due to starting to write again and trying to use my brain... Or just a combination of everything?
I realise it might be hard for folks to tell but I just don't feel like I'm really getting to grips with pacing and wondered if anyone could speak into my situation? Sorry for the long post - if anyone can help I'd be most grateful. Thanks
Mel
Almost every week I end up crashing at some point, but often find it hard to identify what has caused it. Sometimes I get so fed up with trying to figure it out and feeling bad because I'm wondering if I've unintentionally overdone it again that I just conclude that it's just the illness and not anything I've done. Sends my head in knots sometimes.
This week I've tried to pace myself - I'm a mum so always have to do school run and keep things going between 3:30 and 7pm. But during the day I've been resting lots and walking less than I normally do. I've tried to keep my activities to no longer than an hour at a time - computer time, adult colouring etc.
On Wednesday my eldest son had a guitar exam. I managed to arrange a lift for us from a friend as I knew driving myself would have been too much. But saying that it did mean I had to spend the morning being sociable to my kind friend who helped. Then yesterday he played guitar in assembly which I went to for an hour.
The only other thing this week is that I've spent an hour writing the last two mornings. I used to blog and have wanted to restart it to give me a feeling of purpose again.
So today I'm feeling fluey with PEM. I'm wondering have I done too much, was it guitar exam Wednesday and assembly yesterday, or is it due to starting to write again and trying to use my brain... Or just a combination of everything?
I realise it might be hard for folks to tell but I just don't feel like I'm really getting to grips with pacing and wondered if anyone could speak into my situation? Sorry for the long post - if anyone can help I'd be most grateful. Thanks
Mel