Without the fish oil I have a chronic headache. I wonder if it that means it's the elevated PGE2 causing the headache then.I interpret high PGE2 as a sign that fish oil is probably a good idea .. .quality fish oil of course.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Without the fish oil I have a chronic headache. I wonder if it that means it's the elevated PGE2 causing the headache then.I interpret high PGE2 as a sign that fish oil is probably a good idea .. .quality fish oil of course.
Ooh I wish I understood more about this. I took a lot of borage oil (more powerful than evening primrose oil) for years to help with my severe endometriosis pain (and it did help a lot).
Given the high co-morbidity of endo and ME I am wondering if this points toward an underlying defect of eicanisoid (sp) metabolism which predisposes to both.
I wonder @alex3619 whether I was delaying the development of ME or making it more likely.
Because I lived in England then I couldn't get treatment for the endometriosis. Another 'pull yourself together woman' situation. I could get treatment as soon as I moved to NZ. In fact the doctors obviously thought it was strange that I had put up with so much pain and disruption to my life for decades (lying on the bathroom floor bleeding and vomiting anyone?... possibly too much information )
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@justy, I was like this too in the first ten years or so of my illness. I seemed to catch every infection and was always sick with something or just feeling recovered for a few days, only to be slammed with the next infection. Compared to others around me, these infections would always develop into something severe and long-lasting. I would be flattened for at least two weeks with any sore throat. Then, mysteriously, my illness changed about 7-8 years ago. I catch colds at a normal rate (~2x a year or so) but I never develop a fever, ever, so any infection I do get lingers for a long time and affects me more severely than family members.
I also have the type of ME with antinuclear antibodies as described by Prof. Edwards.
Hi I am new at this site. I never get fevers either. I always found this odd. I will feel feverish but it does not register. Are you similar?
Hi, welcome. Yes, many of us with this disease have that problem. Often I will feel feverish but actually have subnormal body temperature when I measure it.
Hi, welcome. Yes, many of us with this disease have that problem. Often I will feel feverish but actually have subnormal body temperature when I measure it.
I have the exact same issue, I suspect both due to CFS and thyroid. I can feel like I have a fever but my temp is only 96 or 97 degrees. I think it is fairly common with our population- still not sure why. I literally never get fevers.
Hot and cold have a neurological component. Its also about what are called set points. If you run cold due to thyroid or other issues, then a normal temp will feel like a fever. Achy is due to cytokines usually. Again, not about heat.Yes, all the signs of a fever. Hot. Cold, achy. But no registered temp! It makes no sense.
Thanks for responding. I never saw this as part of the medical descriptions. You are the first I saw mention this oddity.
I am still trying to accept the CFS label. I know I am sick and I know I was diagnosed but in the back of my mind I think, " what if it is really something else that is solid". Like the doctors missed a different condition that has a known cause or cure...
I have not told the doctors that I do not register a fever because there is so much to tell them and it sounds weird. I have had bad experiences throughout this ordeal with doctors .... Like so many.
3. Loss of thermostatic stability:e.g. subnormal body temperature, marked diurnal fluctuations; sweating episodes, recurrent feelings of feverishness with or without low grade fever, cold extremities
Some of those symptoms sound a lot like CVID Justy. Though usually that is something that happens from birth, as in during your teens and early adulthood you would have gotten way more sick then normal. I don't know how long you have been dealing with illness personally though. Interesting enough a lot of infections can cause a secondary form of Immunol deficiency from the body being over whelmed fighting something off for so long. IVIG is usually very helpful in these cases.