NIH is still recruiting for their intramural study, US patients that fit the criteria need to step up, please if you can consider enrolling for this!
This is the most important bottleneck for change in this disease it seems to me, still, after 1 year they are looking for patients!
If you are moderate and can work out the financial stuff: this should be anyones dream if you think about all the diagnostics that are thrown at you!
The community has to step up and encourage people to enroll!
OMF, ME Action, Healthrising should try to create awareness around this I think!
We keep screaming for the NIH to help and cant get 20 people for a study!
@JenB @Cort @Janet Dafoe (Rose49)
Maybe you can think about using your big platforms to encourage people!
Thank you.
This is the most important bottleneck for change in this disease it seems to me, still, after 1 year they are looking for patients!
If you are moderate and can work out the financial stuff: this should be anyones dream if you think about all the diagnostics that are thrown at you!
The community has to step up and encourage people to enroll!
OMF, ME Action, Healthrising should try to create awareness around this I think!
We keep screaming for the NIH to help and cant get 20 people for a study!
@JenB @Cort @Janet Dafoe (Rose49)
Maybe you can think about using your big platforms to encourage people!
Thank you.