I was rather hoping for some very basic stuff that would already be revolutionary for us,
I do understand that, and agree its needed. However the thing about evidence based approaches is they are typically driven by only certain kinds of evidence. We generally do not have that evidence. So therefore they act to ignore all the other evidence we do have.
Evidence based approaches, in my view, have a high risk of failure and bad advice when there is inadequate research. Given the paucity of studies and funding for many decades we are still largely in the dark about ME. I very much doubt however that NICE would ever admit we simply do not know that much and have no high quality treatment advice using evidence based approaches. (Rituximab is pending.)
The issue with CBT/GET studies is they have the broad, rubber-stamp form of quality studies, while typically avoiding quality methodology. This is how the evidence base can be distorted. If enough poor studies are funded, but have the RCT stamp of approval, then the evidence base gets railroaded.
I have great sympathy for the view that one of the worst things that ever happened to ME was the rebranding as CFS. This despite that chronic fatigue, by itself, is not a mandatory symptom of ME. Energy and fatigue related symptoms and signs, and quite a few, are not the same as just chronic fatigue or even tired all the time.