TheMoonIsBlue
Senior Member
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- 442
I have not been doing well. I found out from my doctor I have elevated ebv, mycoplasma infection, elevated parvovirus, and ridiculously high hhv 6 level 1200 was my level! He said it was high but not highest he has seen. I am unable to tolerate medications and not sure how I can possibly tackle these infections. Maybe I will just die. Can't take antibiotic for mycoplasma bc of stomach. He wanted me to try valycyte for hhv 6 but that would surely kill me. I agreed to try valtrex since its milder. Who knows? Do I need to check into the hospital to get these infections taken care of? Can the HHV 6 being so high cause permanent brain damage? Should I just go a homeopathic route? Confused now more than ever. Hopeless, desperate and heartbroken. Now more than ever I'm certain my sleep has been damaged permanently by this disease in my brain. Please help.
Hi ABCFS12, I'm sorry you are having such a terrible time right now. When you say you are unable to tolerate medications, do you have multiple chemical sensitivity? Or have you just had a lot of reactions to medications? (Immediate reactions, or lots of "side effects?") I am a lot sicker now, and I also find that I can no longer tolerate even a lot of supplements.
Ok, HHV-6a- Neurotropic Virus, definitely can be contributing to your sleep problems. Valcyte can be really rough, but not for everyone. Valtrex is milder. But make sure you drink A LOT of water with it. Another possibility, is Famvir. I heard it may be somewhat effective against HHV6a and EBV, while Valtrex primarily only targets EBV.
ImmunoPro RX, nondenatured whey protein, worked well for me as far as reducing toxicity feelings. Another possibiliy, if your stomach can't tolerate a lot of meds (I had that problem with AV's after a while) is to ask if Intravenous Antivirals and/or Antibiotics can be administered. That way, they go right to the bloodstream, and your stomach isn't burdened with digesting and breaking up these hard tablets.
Wish I could help more!