My weird scalp problem

[Dysfunkion]

For as long as I can remember I've had a lot of strange feelings in my scalp, I remember getting my hair cut when I was little and feeling like someone has poured icy hot on it without even applying any product to it and just shaving my hair. As time went on throughout my life it has only gotten worse and peaked in my mid 20's when I developed EHS and MCS (electro and chemical sensitivity). The weird icy hot sensation from the top of my head upon getting a hair cut will travel down through my face in all the areas where I also can experience this (my forehead, cheeks, ears, sides and around mouth, and jaw).

I got my hair shaved yesterday and it is still going though decreasing in sensation, after I get one it usually takes some days to die down on top of my head. It feels like it's below the skin but not brain deep. It's not an itching on my scalp though my scalp is pretty dry (though lately has been getting a bit more oily, not sure if that is a good sign), it's like an electric icy hot sensation that can feel like a crawling sensation sometimes. Do not have head lice either. The sensation also likes to travel to my inner ear a bit too when it is flaring after getting a hair cut. Another oddity if it helps is that if I play with the tops of my ears my forehead specifically will feel very hot and I'll get a little brain fog.

Has anyone experienced anything like this? I have dug around everywhere and I can find cases that are somewhat similar but nothing just like this.

 

[lenora]

Hi @Dysfunkion.....I wonder if you had damage to your head (nerves) when you were born. Perhaps you didn't crown properly, or there was a new or even incompetent person delivering you. I'm only saying that because you mention that you've had it "for as long as I (you) can remember. Just a thought. Yours, Lenora

 

[Judee]

I was just thinking today that even my eyelash follicles are sensitive. I'm wondering if that's what's happening with you...first the cold sensation of having more air flow but then also the "bruising" of the follicles by doing something to the hair. Idk.

I don't shave my hair but even just putting my hair up on top of my head for a while and then bringing it down makes the follicles feel injured.

??

Edit: I'm chemical sensitive and I can even feel when fragrance is in the air and coating my eyelashes. It's awful.

 

[Dysfunkion]

Hi @Dysfunkion.....I wonder if you had damage to your head (nerves) when you were born. Perhaps you didn't crown properly, or there was a new or even incompetent person delivering you. I'm only saying that because you mention that you've had it "for as long as I (you) can remember. Just a thought. Yours, Lenora

See yeah that's what I think may have happened because this seemed to simply be like this before I was even exposed to much at all. And yeah you got that right actually, when my mother had me she had many "difficulties" I heard but I don't specifically know what happened. I do know she had a miscarriage too. When you say "didn't crown properly" what do you mean though, that the nerves on the top of my head didn't form properly? Everywhere else is fine, my neuropathy like this is all confined to my head and neck.

I was just thinking today that even my eyelash follicles are sensitive. I'm wondering if that's what's happening with you...first the cold sensation of having more air flow but then also the "bruising" of the follicles by doing something to the hair. Idk.

I don't shave my hair but even just putting my hair up on top of my head for a while and then bringing it down makes the follicles feel injured.

??

Edit: I'm chemical sensitive and I can even feel when fragrance is in the air and coating my eyelashes. It's awful.

My eyelash follicles don't seem to be sensitive, just all of the follicles on the top of my head. Like I said what triggers this though isn't anything actually rough so I don't think it's actual damage to the follicles themselves as much as damage to the nerves themselves that are easily irritated because they have no protection (which could even be what is behind my EMF sensitivity), it can also be triggered by chemicals like harsh fragrance in cleaning supplies, perfume, and other assorted scented stuff.

edit - Just took the second lengthy hot shower of the day as it's the only thing that is able to tame it for a short amount of time and I felt like I was going to go mad from the icy hot nerves all over my head, something about the sensory environment of a hot shower mutes it for a short time. This better be gone after tomorrow because I can't be dealing with this nonsense right now. Now that I'm out of the shower it's turned into a tingly warm feeling literally inside my ears, in random parts of my face/scalp, and around my mouth. I can't win with this garbage.

 

[lenora]

By crowning I mean that you weren't in the proper position to be born. Sometimes even forceps can cause problems. Birth is by no means carefree. In most cases (and please let me stress MOST) things are fine, but it can happen.

If your mother is alive, ask her exactly what the problems were. I'd be surprised if she minded telling you at this stage. I had problems with both of my daughters, so it's not uncommon. Not all deliveries result in the baby being dropped in a field and the mother going right back to work. If there was nerve damage, not much can be done....but there are now compound creams that may help the burning, pain...whatever you're experiencing. A lot of us experience this after surgeries. Yours, Lenora

 

[lenora]

hi Judee......I also can't wear my hair in an updo or with any bobby pins, clips or anything that may cause irritatiion. It hurts and like you said, it hurts after we've tried to put it up.

I'm wondering if alternate hot and cold water may help with some of your pain. It does mine, but of course our cold water isn't as cold as yours would be. Still, it's worth a trial. If nothing else, perhaps it takes our mind off the existing pain. I hope you feel better. Yours, Lenora

 

[Dysfunkion]

So reviving my old topic from the dead here as yesterday I got a hair cut and I wanted to update this topic live as the reaction is happening. Just shaved down, nothing fanc,y and no product added to it. When I got home I just gave it a good wash (my shampoo I'm currently using doesn't do anything like the hair cut reaction) and that was it. Before it I was just having an ordinary day.

When I first got out nothing was entirely off but later it set in and symptoms appear in waves over the next days with immune like cascades and issues effecting my cranial nerves but in a pattern that doesn't follow any specific pathways save for the fact that it's localized around the nerves where the hair was shaved and that it is the same base sensation which is an icy hot feeling largely at the top of my head, in my forehead (secondary to upper cheeks and a little into sides/corners of mouth), and deep inside my ears. My sinus during the symptom waves will also starting dripping and acting up. My lips will also have a tendency to become dry and swell up. My eyes also have a tendency to become a bit red. My palms of my hands also tend to get a weird marbled look to them.

The neuro-psychiatric effects are a feeling of over excitation stemming from the nervous system in the areas affected, an increase in general anxiety, problems with communication and an increase in speech issues like loss of vocal range/problems pronouncing words, and problems processing social interactions. Essentially all symptoms that flare during a POIS (post orgasmic illness, the only other thing that flared a mock POIS episode before was a dose of D3 a few times, some cross over symptoms can be triggered by problematic EMF exposure) episode will flare during "the hair cut sickness". I have actually asked around for years on the subreddit and forum for POIS and actually managed to find one other person with the hair cut sickness problem. In fact besides this I am the only person I know of with this condition.

I'm stumped on this one, the only thing I can think of is that there is an infection in the roots around the nerves that when disturbed spreads to them in a non-specific pattern and releases some kind of toxin that is able to induce a specific immune cascade. The same infection can be triggered in different ways by various chemical releases in the body. No food has ever caused this specific reaction.

edit 9/25 - It's still going on, feeling very flu-y tonight with the same brain fog and autistic like symptoms upon the facial/head neuropathy. The neuropathy itself isn't as strong tonight though. Lots of a nasal drip too with the inflamed sinus and brain feeling. This is the longest reaction I usually have to anything out of all my triggers too even a POIS episode doesn't outlast the "hair cut sickness" which typically goes on for a good6-7 days before really starting to taper off.