Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thanks Jody,
I've already added betaine HCL from this appt. It's meant to break down protein so I can then absorb it better. With a little luck I'll regain some weight...
Hi Rusty,
I'm taking one 650mg capsule with the main protein meal per day. I just buy from iherb.com, either Dr's Best or Natrol brands. Yep, still taking it many months on. As an optimist I'd say I've gained half a kilo, maybe, on some days...so nothing noteworthy unfortunately. But my gut is feeling a little better overall lately so I'm hoping that's a good sign of things to come...
It's really easy to post as things happen for me. Trying to remember and writing long posts isn't the way to go. I wish there were more patients who would explain their version of ME/CFS and what treatment they are on. That way others who are very similar might find it more helpful. Off my soapbox now, cheers!