Cheryl M
Senior Member
- Messages
- 115
- Location
- North-west England
(Caution: descriptions of snot await)
Two and a half years ago I was exhausted after a shopping trip so collapsed and slept for a few hours. When I woke up my nasal mucosa had ceased to work. They have never worked properly since then.
My nose is completely dry inside almost all the time. When I eat a curry a lot of very thin liquid snot gushes out but as soon as I've finished my nose dries up again. My sense of smell has been quite significantly affected. Doctors who have shone a light up it have grudgingly conceded, "It's very inflamed inside." So far they've prescribed ephedrine, two types of steroids and saline spray. Nothing has had any effect except that after taking steroids + saline I have noticed blood on the tissue after wiping my nose.
I had the initial blood tests for Sjögren's done (because genitalia are dry, plus mouth and eyes to some extent) but they came back normal, though my GPs are still investigating.
I can't breathe properly because my nose feels as if it is pinched shut on the inside with a clothespeg (clothespin). One nostril hisses like an aerosol can, the other groans like a vacuum cleaner and neither admits very much air. (This is called nasal congestion, apparently.) I have been researching this on the web and think it might be sinusitis, but it has been going on for years now and I never get infections (with pus discharge/swelling/pain) in that area, and the Internet keeps telling me sinusitis is usually temporary and caused by infection...
Also the saline instructions say to spray up one nostril and allow to flow out through the other, and it is impossible to get water to flow from one nostril to the other.
I've been diagnosed with "benign" hypermobility plus collapsed lung, hernia and maybe vaginal stenosis, and my theory at the moment is that all my soft tissues are collapsing, my sinuses among them.
Is this sinusitis, d'you think? Should I try to get my GP to refer me to an ENT? Would they do anything useful?
Two and a half years ago I was exhausted after a shopping trip so collapsed and slept for a few hours. When I woke up my nasal mucosa had ceased to work. They have never worked properly since then.
My nose is completely dry inside almost all the time. When I eat a curry a lot of very thin liquid snot gushes out but as soon as I've finished my nose dries up again. My sense of smell has been quite significantly affected. Doctors who have shone a light up it have grudgingly conceded, "It's very inflamed inside." So far they've prescribed ephedrine, two types of steroids and saline spray. Nothing has had any effect except that after taking steroids + saline I have noticed blood on the tissue after wiping my nose.
I had the initial blood tests for Sjögren's done (because genitalia are dry, plus mouth and eyes to some extent) but they came back normal, though my GPs are still investigating.
I can't breathe properly because my nose feels as if it is pinched shut on the inside with a clothespeg (clothespin). One nostril hisses like an aerosol can, the other groans like a vacuum cleaner and neither admits very much air. (This is called nasal congestion, apparently.) I have been researching this on the web and think it might be sinusitis, but it has been going on for years now and I never get infections (with pus discharge/swelling/pain) in that area, and the Internet keeps telling me sinusitis is usually temporary and caused by infection...
Also the saline instructions say to spray up one nostril and allow to flow out through the other, and it is impossible to get water to flow from one nostril to the other.
I've been diagnosed with "benign" hypermobility plus collapsed lung, hernia and maybe vaginal stenosis, and my theory at the moment is that all my soft tissues are collapsing, my sinuses among them.
Is this sinusitis, d'you think? Should I try to get my GP to refer me to an ENT? Would they do anything useful?