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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@Ambrosia_angel There are 2 two places that look at fatigue /M.E so I will also check if they do I.V's.
Heh, I like the taste of the VSL .... mmmm, bacteriasGot all my stuff for pre-treatment today, both by flight and post. Sipping on some Vsl right now, bit gross but I'll get use to it.
Fridge is jam packed with packages and need to find some press to put rest away safely. It seems a huge amount to get through in a day, let alone 3 months! And the cost of it, just realised now the total amount - madness! it better make me better or at least make some difference.
Got all my stuff for pre-treatment today, both by flight and post. Sipping on some Vsl right now, bit gross but I'll get use to it.
Fridge is jam packed with packages and need to find some press to put rest away safely. It seems a huge amount to get through in a day, let alone 3 months! And the cost of it, just realised now the total amount - madness! it better make me better or at least make some difference.
VSL is probiotics, which are the nice bacteria we want in our tummies It's especially good take it when antibiotics are part of the treatment plan, to make sure the good stuff stays and the bad stuff can't take over. For some of us, it's especially essential due to low or null levels of bifidobacteria, etc.@Valentijn Is that what is in it ? bacteria? I added a splash of OJ to the water with it this morning, tasted a bit better. It's not awful, just a bit funky or something, and I think I will get used to it and not notice it soon.
I'd suggest keeping your August 4th appointment, since you'll probably just starting getting IV things set up then, instead of starting actual IVs on that date (unless you plan to do all of your IV in Belgium).I am late starting this pre-treatment now, for various reasons. Will this effect when I can start IV's ? Push it back further? Or can I continue with this lot and still start IVs on August 4th.?
Likewise.. at first KDM said Stop taking them, but when gut was a bit healed (from Mesalomine (Pentassa)) started them again. Still cause diarrhea but plugging forward bec will need them once on abxmy gut must be really messed up cuz VSL gives me diarrhea and so do other powerful probiotics
my gut must be really messed up cuz VSL gives me diarrhea and so do other powerful probiotics
How long were you taking it for before it affected you?
I have only taken 5 or 6 sachets now so far. Since my stomach bloated and swelled up, been severely constipated. So be glad of any way shifting it outta me, even diarrhea at this point!
Not sure to take my usual stuff to get things moving, but just wait it out for new gut stuff to start working or doing something.
I'd suggest keeping your August 4th appointment, since you'll probably just starting getting IV things set up then, instead of starting actual IVs on that date (unless you plan to do all of your IV in Belgium).