This has appeared as a 'news flash' on Dr Enlander's website:
I don't know if it's the same study mentioned back in May as being in the pipeline:
http://forums.phoenixrising.me/inde...many-faceted-exertion-physiology-study.17530/
In that thread, it said:
Sounds very well worth participating.
Mount Sinai is conducting a study on ME/CFS, to learn more about the immune system and genomic data of patients with ME/CFS. The study will involve filling out questionnaires, riding an exercise bike for up to 30 minutes as tolerated, taking a stool sample for genetic testing and drawing blood for three consecutive days after the initial exercise. Participants will receive their test results as well as $140 compensation (check). If you are interested in participating, please email micol.zweig@mssm.edu, with any questions and your contact information. Micol Zweig, the Clinical Research Coordinator, will contact you via email.
I don't know if it's the same study mentioned back in May as being in the pipeline:
http://forums.phoenixrising.me/inde...many-faceted-exertion-physiology-study.17530/
In that thread, it said:
May 18: The following is an XMRV Global Action Facebook repost of an update on progress from Derek Enlander, MD – a specialist in chronic fatigue syndrome (ME/CFS) diagnosis & treatment, and director of New York's new Mount Sinai ME/CFS Research Center.
_________________
Update from our ME/CFS Center at Mount Sinai Medical Center in New York
The research proposal that we submitted months ago was a massive comprehensive multidimensional multidiscipline project.
• We have now completed the final stages of our IRB research proposal for Post Exertion Study in ME/CFS Patients. [The Institutional Review Board proposal is the formal design or plan for a proposed research activity]. These studies are a comprehensive series of serology, virology, immunology, cardio/pulmonary physiology and gene studies before and after exercise.
• Final IRB approval should be received very soon. This will be followed by Patient Recruitment.
• We have recruited Christian Becker MD, PhD, a pulmonologist and lead exercise physiologist at Sinai to spearhead the IRB.
• We hope that [as a] result of the study we may answer some of the questions relating to the NICE/PACE GET (graded exercise therapy). We will address the question [of whether] GET is, or is not, a useful mode of treatment.
• The study will also help us understand the biology of the disease, which is still obscure.
The CDC has been in contact with us and has shown interest in the exercise study.
• They want to remain in close contact.
• They have recently modified their tests and including exercise relating to ME/CFS. Cause and effect?
It would be nice to believe that there is a positive attitude change. They have noted that The Mount Sinai ME/CFS Center is the first major medical school ME/CFS center in the nation.
- Derek Enlander, MD (derek.enlander@mssm.edu)
Sounds very well worth participating.